Ehlers-Danlos Society Holds Online COVID-19 Support Sessions

Ehlers-Danlos Society Holds Online COVID-19 Support Sessions
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The Ehlers-Danlos Society is offering a series of virtual events for community members to express concerns, ask questions, and address practical challenges during the global COVID-19 (Coronavirus) outbreak.

The free, hour-long digital support meetings will run on the Zoom teleconferencing platform. Each chat session is limited to 100 people, on a first come, first served basis.

“We know members of our community are feeling overwhelmed with the current situation with COVID-19 [Coronavirus],” the organization said. “It may seem a daunting time, and it is important to look after our emotional and mental health.”

The online events are in addition to the nonprofit’s regular virtual support groups, helpline, and webinars. They provide space where community members around the world may chat with each other and society representatives.

There’s usually no need to download Zoom; the meetings should automatically open after clicking on the event link. Participants will be prompted by their devices to “allow” equipment camera and audio. Visit this site for more information about Zoom and how it works.

Below is a list of upcoming meetings. The times are for the U.S. and Canada. Use this converter to find the meetings in other time zones.

Ehlers-Danlos syndrome (EDS) refers to a group of genetic disorders that affect connective tissues, which provide structure to joints, skin, blood vessels, and other tissues and organs. Depending on the type of EDS, symptoms can range from loose joints to life-threatening complications. It is estimated that one in 5,000 individuals in the world have EDS.

“The well-being of our community and health professionals is our utmost priority,” the society said. “We would like to reassure our community that we will do our very best to help you with questions you may have.”

The society said it will update its webpage on COVID-19 regularly as the situation develops, “in line with recommendations from the WHO [World Health Organization], the Centers for Disease Control and Prevention [CDC], and other official sources.”

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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Patrícia holds her PhD in Medical Microbiology and Infectious Diseases from the Leiden University Medical Center in Leiden, The Netherlands. She has studied Applied Biology at Universidade do Minho and was a postdoctoral research fellow at Instituto de Medicina Molecular in Lisbon, Portugal. Her work has been focused on molecular genetic traits of infectious agents such as viruses and parasites.
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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