Fatigue and Ways to Deal With It When You Have EDS

Fatigue and Ways to Deal With It When You Have EDS
0
(0)

Fatigue is common to people with a chronic disease, and a likely constant companion to those with Ehlers-Danlos syndrome.  Here are some tips to help you manage fatigue, and possibly get relief.

Fatigue is difficult to quantify

Fatigue is called chronic if it’s been present for more than six months and not relieved by rest. Because feelings of fatigue can be subjective and difficult to quantify, or treat, clinicians sometimes disregard it.

Chronic fatigue is burdensome, however, and affects quality of life.

Fatigue in EDS

EDS is the name given to a group of connective tissue disorders characterized by collagen deficiency that diminishes the strength of ligaments, tendons, muscles, skin, and blood vessels.

Fatigue is particularly common in hypermobile EDS (hEDS).

Contributing factors can include sleep disorders, muscle deconditioning (loss of muscle tone and endurance), headaches, and nutritional deficiencies. It is important to exclude other causes, such as anemia or a chronic infection.

In most cases, fatigue in hEDS results from chronic pain.

Ways to deal with fatigue

You and your physician should discuss the possible causes of fatigue, its impact, and stages of management. While no treatment directly targets fatigue, certain medications effectively address problems that may end up causing it.

For example, prescription analgesics and antidepressants used to control pain may indirectly help to relieve fatigue. Controlling autonomic heart dysfunction, blood pressure, and nighttime urination may also help.

Other possible ways to alleviate fatigue include:

Pacing yourself

Conserve your energy and pace yourself, making sure you get enough rest between activities.

Using relaxation techniques

Common relaxation techniques may help in the management of pain, sleep, and anxiety. They include progressive muscle relaxation, meditation, yoga, and music and art therapy.

Making lifestyle changes

Improving overall fitness, sleeping patterns, hydration, and diet can also help. In addition, cognitive-behavioral therapy may help you change any unhealthy habits that may cause or add to fatigue.

Supplement use

While there’s limited evidence supporting the use of nutritional supplements, some like carnitine, co-enzyme Q10, and 5-HTP may be recommended. Be sure to discuss supplements with your doctor before taking any, however, since some supplements can interact with certain medications, and there are no specific dose recommendations for hEDS.

What to avoid

Since sleep problems can make fatigue worse, avoid caffeine and sugar, large meals, watching television, looking at a computer or smartphone screen, and doing anything that might be emotionally upsetting within a few hours of bedtime. Taking a warm bath, and reading a book or magazine may be helpful.

 

Last updated: May 27, 2020

***

Ehlers-Danlos News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Total Posts: 0
Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
×
Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Latest Posts
  • sleep hygiene
  • brain fog in EDS
  • hEDS and fatigue
  • mindfulness

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?