Unbreakable — Kimberly Zapert

It took many years to piece together the puzzle of my bodily weirdnesses. I spent the last couple of years before my diagnosis of Ehlers-Danlos syndrome investigating several possible connective tissue disorders while…

Before I was diagnosed with postural orthostatic tachycardia syndrome and Ehlers-Danlos syndrome (EDS), I underwent an ultrasound of my carotid arteries to rule out blockage as the cause of my pre-syncope.

Living independently with Ehlers-Danlos syndrome is possible. So is living with a partner. Both require some thought and adaptation. Developing and maintaining healthy relationships requires a great deal of work, regardless of…

The initial pandemic shutdowns last spring brought my family’s very busy schedule to a grinding halt. We decided to use the time to improve our emotional and physical well-being. We worked on our relationships…

After recently honoring Rare Disease Day on Feb. 28, I’m contemplating the obvious: A person is not defined by a diagnosis. This usually means they don’t allow a condition to limit their enjoyment of…

Too often while pursuing answers to health questions, people with an Ehlers-Danlos syndrome are told that their physical symptoms must be caused by stress, or perhaps they’re psychosomatic, because no obvious explanations are available.

When I was new to the idea that I may have an Ehlers-Danlos syndrome, I was convinced that I needed a firm diagnosis before I could receive treatment and finally find some relief from…

Change happens. I have had many roles in my life, including being a daughter, wife, and mother. I’ve also been a student, artisan, neighbor, patient, and advocate. You probably have had similar experiences. Roles…

Usually, negative feelings are rooted in unmet expectations. Examining those expectations and deciding if they are reasonable can be particularly helpful when life changes. I recently adjusted my expectations for the holiday season, and…

A few months ago, our community’s theater company held auditions for two productions. At the suggestion of someone whose opinions I trust, I contacted the theater company and arranged to audition for one. The…

In the not-too-distant past, I hated shopping. Walking across parking lots and winding my way through store aisles was incredibly tiring, thanks to my Ehlers-Danlos syndrome (EDS) and comorbid conditions. Prolonged standing and…