News

Review highlights impact of uncertainty in hypermobile EDS

People with hypermobile Ehlers-Danlos syndrome (hEDS) often face uncertainty and feelings of dismissal from healthcare providers, a new review paper highlights. The findings underscore how important it is for clinicians to have open and honest conversations with patients, building relationships to foster collaboration, and make patients feel empowered to…

Jaw muscle pain highly prevalent in people with cEDS, hEDS: Study

People with classical Ehlers-Danlos syndrome (cEDS) or hypermobile EDS (hEDS) commonly have disorders affecting the jaw muscles and often experience chronic pain, a study reported. Moreover, according to researchers, many cEDS and hEDS patients among the study population were found to have psychological distress. Specifically, more than 50% reached the threshold…