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People with hypermobile Ehlers-Danlos syndrome (hEDS) who also have autism commonly experience complicated journeys to diagnosis of both conditions — but once both conditions are accurately diagnosed, patients often report feeling empowered and better able to manage their own care. “Diagnostic journeys were lengthy, gruelling and expensive, particularly for…

People with Ehlers-Danlos syndrome (EDS) are more likely than others to also be diagnosed with a rare and often severe chronic pain condition that usually affects the arms and legs, according to a new U.S. study. In a review of insurance data, researchers in New York found that complex…

Nearly half of people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) experience moderate to severe pain at the time of diagnosis, a study in Italy shows. The study identified older age, hypermobile EDS (hEDS), and headaches as factors linked to greater pain severity. “An early pain…

Urinary symptoms, chiefly needing to pee more than usual, in people with hypermobile Ehlers-Danlos syndrome (hEDS) may not be caused by bladder problems, but instead by poor coordination of the pelvic floor muscles and the nerves involved in urination, according to a new study. Tests in 27 patients showed…

Children and young adults with hypermobile Ehlers–Danlos syndrome (EDS) had higher rates of allergic rhinitis (hay fever), medication allergies, food allergies or intolerances, and asthma than children in the U.S., a study showed. “Due to the increased prevalence of atopic conditions, health care providers should be aware of and…

Pelvic pain and sexual health problems are common among women seen for genito-pelvic pain who had signs of joint hypermobility, including those with hypermobile Ehlers–Danlos syndrome (EDS), a study found. Women with hypermobile EDS (hEDS), hypermobility spectrum disorder (HSD), or other hypermobility features had…

Medications to treat psychiatric disorders did not affect heart rhythms in people with hypermobile Ehlers-Danlos syndrome (hEDS) in a retrospective study. Still, “routine cardiovascular monitoring and interdisciplinary care are recommended for hypermobile patients on psychoactive medications,” the researchers wrote. hEDS patients had a higher psychiatric burden and greater psychoactive…

Long-term medical cannabis use may help ease pain related to hypermobility for some people with Ehlers-Danlos syndrome (EDS), according to a U.K.-based registry study. The researchers assessed treatment outcomes among people with extremely flexible joints, including individuals with hypermobile EDS (hEDS), who used medical cannabis for at least…

Women in a small study of hypermobile Ehlers-Danlos syndrome (hEDS) reported chronic pain and high rates of kinesiophobia, or fear of movement or activity, both of which were associated with worse mental health scores and lower physical function. Despite a history of adult…

Women with self-reported Ehlers-Danlos syndrome (EDS), many with the hypermobile form, commonly reported digestive symptoms and altered eating behaviors, with more than one-third considered at risk of having an eating disorder, a study found. Many participants reported food allergies, painful or fearful eating, and digestive symptoms, while some also…