Health Insights

March 10, 2021March 10, 2021

Plastic Surgery for EDS

Health Insights

The skin of people with Ehlers-Danlos syndrome is thin, vulnerable, and prone to injury. Because of this, patients sometimes need plastic surgery, which involves the repair, reconstruction, or replacement of physical defects ... Read more

March 3, 2021March 3, 2021

Raynaud’s Phenomenon in EDS

Health Insights

If you have Ehlers-Danlos syndrome (EDS), you may experience periods of poor blood flow to your fingers and toes that turn them white or blue. These episodes are known as ... Read more

February 24, 2021February 24, 2021

Massage Therapy for EDS

Health Insights

Massage therapy may help ease symptoms, such as tight muscles and pain, often experienced by patients with Ehlers-Danlos syndrome. Here is some information about the complementary treatment that may be ... Read more

February 17, 2021February 17, 2021

Orthopedic Problems in EDS

Health Insights

If you have Ehlers-Danlos syndrome (EDS) you may experience a variety of issues related to muscles, bones and joints. Orthopedics is the medical specialty that deals with those problems. Following ... Read more

February 10, 2021February 10, 2021

About EDS and Advocacy

Health Insights

Health advocacy efforts generally promote health and access to care. If you or a family member has a rare disease such as Ehlers-Danlos syndrome (EDS), it may be helpful to ... Read more

February 4, 2021February 4, 2021

EDS and Puberty

Health Insights

Ehlers-Danlos syndrome (EDS) is a group of rare genetic disorders that lead to connective tissue problems. EDS tends to occur much more frequently in women than men. A study in ... Read more

January 27, 2021January 27, 2021

Reproductive Options for EDS Patients

Health Insights

If you have Ehlers-Danlos syndrome (EDS) and want to have biological children, you may be worried about passing the disease on to them or how the disease could affect your ... Read more

January 20, 2021January 20, 2021

EDS and Your Skin

Health Insights

Skin issues are common to people with Ehlers-Danlos syndrome (EDS). Here is more information about how EDS can affect your skin, as well as some ways in which you can manage ... Read more

January 13, 2021January 13, 2021

Your EDS Treatment Team

Health Insights

If you have Ehlers-Danlos syndrome (EDS), you may need to see a multidisciplinary treatment team, in addition to your primary care physician, to treat the symptoms you may experience. Because EDS ... Read more

January 6, 2021January 6, 2021

EDS Patient Registries and Their Importance

Health Insights

Patient registries aim to help researchers better understand a particular disease, establish best practices, and, ultimately, find a cure. If you have Ehlers-Danlos syndrome (EDS), there are multiple registries that ... Read more