Health Insights

Plastic Surgery for EDS

The skin of people with Ehlers-Danlos syndrome is thin, vulnerable, and prone to injury. Because of this, patients sometimes need plastic surgery, which involves the repair, reconstruction, or replacement of physical defects involving the skin or other areas. Why plastic surgery may be needed EDS refers to a group of genetic…

Raynaud’s Phenomenon in EDS

If you have Ehlers-Danlos syndrome (EDS), you may experience periods of poor blood flow to your fingers and toes that turn them white or blue. These episodes are known as Raynaud’s phenomenon. Here is more information about this disorder, its relationship to EDS, and suggestions for managing it.

Massage Therapy for EDS

Massage therapy may help ease symptoms, such as tight muscles and pain, often experienced by patients with Ehlers-Danlos syndrome. Here is some information about the complementary treatment that may be helpful to you if you have EDS. What is EDS? EDS refers to a group of genetic disorders…

Orthopedic Problems in EDS

If you have Ehlers-Danlos syndrome (EDS) you may experience a variety of issues related to muscles, bones and joints. Orthopedics is the medical specialty that deals with those problems. Following is more information about orthopedic problems affecting patients with EDS and how doctors may treat them. How EDS causes…

About EDS and Advocacy

Health advocacy efforts generally promote health and access to care. If you or a family member has a rare disease such as Ehlers-Danlos syndrome (EDS), it may be helpful to learn more about such work and how you might get involved. What is EDS? EDS refers to a group…

EDS and Puberty

Ehlers-Danlos syndrome (EDS) is a group of rare genetic disorders that lead to connective tissue problems. EDS tends to occur much more frequently in women than men. A study in the U.K. looked at the medical records of more than 6,000 patients…

Reproductive Options for EDS Patients

If you have Ehlers-Danlos syndrome (EDS) and want to have biological children, you may be worried about passing the disease on to them or how the disease could affect your pregnancy. Here is information about the disease, pregnancy, and your reproductive options. How is EDS inherited? Children can inherit EDS…

EDS and Your Skin

Skin issues are common to people with Ehlers-Danlos syndrome (EDS). Here is more information about how EDS can affect your skin, as well as some ways in which you can manage these problems. How may EDS affect your skin? Although specific symptoms vary, most types of EDS have some degree…

Your EDS Treatment Team

If you have Ehlers-Danlos syndrome (EDS), you may need to see a multidisciplinary treatment team, in addition to your primary care physician, to treat the symptoms you may experience. Because EDS primarily affects the connective tissues of the body, the resulting changes in those tissues can lead to symptoms…

EDS Patient Registries and Their Importance

Patient registries aim to help researchers better understand a particular disease, establish best practices, and, ultimately, find a cure. If you have Ehlers-Danlos syndrome (EDS), there are multiple registries that may be of interest to you. What is EDS? EDS refers to a group of genetic disorders affecting the…