For people with Ehlers-Danlos syndrome (EDS), it’s important to wear sunscreen while outdoors to protect their very fragile skin as overexposure to the sun can cause skin damage. What ... Read more

Ehlers-Danlos syndrome (EDS) is a rare condition that affects connective tissue, which is important for maintaining skin elasticity and the shape of organs. Many patients experience hypermobility of joints ... Read more

For parents of children with a rare disease like Ehlers-Danlos syndrome (EDS), managing the disease and going to school can be challenging. Here are a few tips to help: ... Read more

Effectively managing a rare disease like Ehlers-Danlos syndrome (EDS) can be challenging. Here are five tips to get the most out of your doctor’s appointments: What’s new since the ... Read more

Ehlers-Danlos syndrome (EDS) is the name given to a group of genetic disorders that weaken the connective tissues supporting muscles, blood vessels, and other tissues. Often, the first time ... Read more

Ehlers-Danlos syndrome (EDS) is a rare heritable disease, which affects the connective tissue. Patients generally have soft, velvety skin that is fragile and does not heal quickly. In many ... Read more

A diagnosis of Ehlers-Danlos syndrome (EDS) often leaves patients and their families with many questions. It can be hard to find information about rare diseases and connect with other ... Read more