A young man with vascular Ehlers-Danlos syndrome (EDS) developed a cerebral air embolism caused by air entering blood vessels in his brain that was difficult to diagnose and illustrated the importance of carefully reviewing CT scans. “Prompt identification of cerebral air embolism allows supportive measures to be started to…
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While I’ve written before about tips for traveling with Ehlers-Danlos syndrome (EDS), I learned some new things recently that were helpful for traveling internationally. I was surprised at how just a few items made a recent trip to Europe much easier. They include the following: A good travel pillow:…
For people with hypermobile Ehlers-Danlos syndrome (hEDS), intense pain in several body regions correlates with symptoms of depression and pain-related anxiety, a study reports. Depressive symptoms were associated most strongly with pain intensity in the lower extremities and in the abdomen. “This is the first study on patients with…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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