Women with self-reported Ehlers-Danlos syndrome (EDS), many with the hypermobile form, commonly reported digestive symptoms and altered eating behaviors, with more than one-third considered at risk of having an eating disorder, a study found. Many participants reported food allergies, painful or fearful eating, and digestive symptoms, while some also…
Discussion
It’s been eight months since a fall off my horse led to a badly broken rib and plenty of associated muscle and soft tissue damage. While I’ve made huge strides in my recovery, there are still a few things that aren’t quite back to normal — or at least my…
Blocking certain steroid hormone signaling helped reduce the risk of life-threatening blood vessel rupture in a mouse model of vascular Ehlers-Danlos syndrome (VEDS), according to a new study. Unexpected tears in the aorta, the largest blood vessel in the body, are a major concern in VEDS. Using a mouse…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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