Marisa Wexler, MS, senior science writer —

Hypermobile Ehlers-Danlos syndrome (hEDS) may be caused by genetic mutations that impair the body’s ability to process folate, the natural form of vitamin B9. That’s the idea put forward by scientists at Tulane University, in the paper “Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis,” which…

People with vascular Ehlers-Danlos syndrome (vEDS) who are treated with certain blood pressure medications — namely beta blockers (BB) and/or angiotensin II receptor blockers (ARB) — are at lower risk of death and disease progression, a broader analysis of patients in the U.K. suggests. “The observation of improved clinical…

A man with vascular Ehlers-Danlos syndrome (EDS) underwent a vein graft surgery to replace a damaged section of artery in his right arm with good results, as described in a recent report. “It has been four years after the operation … and the patient has good right-hand function,” the scientists…

Compared with the general population, people with Ehlers-Danlos syndrome (EDS) are at a greater risk of complications following anterior cervical discectomy and fusion, a common surgery to treat damage to the cervical spine of the neck, a study reports. “EDS presents a challenge to cervical spine fusion patients who…

Surgical treatments for brain blood vessel problems with vascular Ehlers-Danlos syndrome (EDS) are increasingly successful, but caution is needed because the procedures carry a high rate of complications that can be deadly, a new study shows. “Endovascular therapy [blood vessel-based surgery] in patients with vascular EDS can be performed efficaciously, with…

The number of adolescents with Ehlers-Danlos syndrome (EDS) who identify as transgender or gender diverse (TGD) was much higher than would be expected given national averages, a new analysis of data from a U.S. specialty clinic shows. “The cause of the association between TGD and EDS is unclear, but…

Many people with hypermobile Ehlers-Danlos syndrome (hEDS) have tried complementary and alternative medical (CAM) techniques like massage therapy or meditation and some report these help manage pain and other symptoms, according to a new study. “Our study shows that clinicians should be aware that many patients with chronic pain…

Lesions in the abdominal aorta — the lower part of the large blood vessel that carries blood from the heart out to the rest of the body — are common among people with vascular Ehlers-Danlos syndrome (vEDS), a new study highlights. “The main finding of the present study is…

Poorer bone density and mineral content can be common in people with hypermobile Ehlers-Danlos syndrome (hEDS), likely as a result of reduced physical activity, a study indicates. “Based on the results of this study, we suggest that health care workers recommend, like in healthy individuals, regular physical activity and…

As people with vascular Ehlers-Danlos syndrome (vEDS) age, their risk of damage to the aorta, a large artery carrying blood from the heart to the body, rises, a study suggests. The study, “Assessment of arterial damage in vascular Ehlers-Danlos syndrome: A retrospective multicentric cohort,” was published…