This May, people around the globe will participate in a number of ways to raise awareness about Ehlers-Danlos syndrome…
Articles by Mary Chapman
As part of its commitment to support rare disease research, the Mike and Sofia Segal Foundation has pledged $6.7 million…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
From committing repeat “acts of awareness” to participating in social media challenges, supporters globally are marking Ehlers-Danlos syndrome (EDS) and…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
Scores of virtual events are on tap for global EDS and HSD Awareness Month, observed each May. The activities are…
The skin of people with Ehlers-Danlos syndrome is thin, vulnerable, and prone to injury. Because of this, patients sometimes need…
Massage therapy may help ease symptoms, such as tight muscles and pain, often experienced by patients with Ehlers-Danlos…