Santiago Gisler,  —

Celiprolol, a therapy that improves heart rate and reduces blood pressure, can strengthen the aortic walls in a mouse model of vascular Ehlers-Danlos syndrome (vEDS), preventing the aorta from rupture, according to an animal study. Results from the study, “Celiprolol but not losartan improves the biomechanical integrity of the aorta…

The therapy celiprolol increased the survival rate and possibly lowered annual incidence of arterial events in patients with vascular Ehlers-Danlos syndrome (vEDS), according to results of a long-term study announced by Acer Therapeutics. The results were published in the Journal of the American College of Cardiology, in…

The Ehlers-Danlos Society announced that the large-scale Hypermobile Ehlers-Danlos Syndrome Genetic Research Study, aiming to find genetic markers underlying hypermobile Ehlers-Danlos syndrome (hEDS), has started recruiting participants. Following two independent and anonymous donations — each around $1 million — to the Ehlers-Danlos Society in early 2018 and 2019,…

Erector spinae plane (ESP) block can improve the safety of surgical procedures in patients with Ehlers-Danlos syndrome (EDS) and offer effective pain relief, according to a case report. The study evaluated pain perception in a patient after vascular ring repair surgery. The case report, “The erector spinae plane block…

The Cherry Hill Education Association raised more than $10,000 for the non-profit organization Ehlers-Danlos Society through its 14th annual “Volley for Support” fundraising tournament that took place in October 2018. The Society’s global community includes patients, caregivers, healthcare professionals, and supporters, who work to improve the lives of…