An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.Sometimes managing Ehlers-Danlos syndrome (EDS) feels like choosing the lesser of two evils. Should I do something that helps me in the long run, even if it causes issues in the short term? Currently, I’m having that debate regarding kinesiology tape for my tennis elbow. It helps with the…
I often think about how my Ehlers-Danlos syndrome (EDS) is affected by the weather. I also wonder whether the biggest factor in my EDS symptoms is the weather itself or how my activities change because of it. I’ve been experiencing wild temperature swings lately, ranging from 15 F to…
The past couple weeks have been cold and stressful, so I needed a bit of a pick-me-up. I turned to a television show I hadn’t watched in a while called “The Wizard of Paws,” which follows orthotist Derrick Campana as he makes prosthetic limbs, braces, and carts for animals in…
It’s been really cold here in Virginia recently. I’m a New Englander at heart, so I really don’t mind the cold weather, but down here in the South, life isn’t set up for the kind of temperatures we’ve been having, and definitely not for snow. It’s been a struggle for…
There are times when life with Ehlers-Danlos syndrome feels like a revolving door of minor injuries and sprains. Of course, I have my chronic issues that cause problems, such as my right shoulder, right ankle, and right ring finger (apparently the right side of my body is cursed!), but then…
The last couple of weeks have been fun, but stressful. I love the holiday season, but that doesn’t mean that the business and stress of it all doesn’t get to me. I had a blast with my brother and his family, but since they live abroad, we try to…
Recently, a reader asked me about Ehlers-Danlos syndrome (EDS) support groups and other organizations, and various ways of handling daily life with EDS. That got me thinking about my own support networks and how they’ve changed over the years. It also made me wonder how others with EDS approach…
Sometimes the soreness I experience in my body seems to come out of nowhere. I’ll be fine one day and then bam, I’ll wake up the next morning feeling superstiff and awkward for no apparent reason. The other night, I went to bed tired after a long and busy day,…
I can’t believe there’s only a couple of weeks until Christmas. It feels like this year has flown by! Every year on the weekend before Thanksgiving, I spend time with my two best friends from college. They’re the kind of friends you can go weeks or months without talking to,…
With Christmas rapidly approaching, I’m excited about the holidays — partly because I’ll feel more confident in what I eat this year. Between my alpha-gal syndrome and Ehlers-Danlos syndrome (EDS) food sensitivities, I sometimes have to struggle to enjoy holiday gatherings where food is served. But I’ve…
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