An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.A few days ago, I stumbled upon a recent blog post titled “Come As You Are: The Autoimmune Equestrian” on the website Eventing Nation. Eventing, or the triathlon of horse sports, as it’s often called, has a range of levels, from Olympic all the way down to…
I hope everyone had a restful holiday and New Year’s, however you choose to celebrate! Mine didn’t turn out as I had planned. My Ehlers-Danlos syndrome (EDS) threw in some challenges, but thankfully, a little ingenuity managed to help me figure out a workaround. Like most of the country,…
I’ve always loved the holiday season. Even though I can’t embrace it with abandon, as I did as a small child, I still revel in the feelings of Christmas. To me, the holiday season is truly about giving to others. This time of year, people are often gentler to…
After setting off a pain flare with a brief shoulder subluxation, or partial dislocation, a few weeks ago, I’ve thankfully been able to get things under control. Babying it a little bit and getting bodywork from my amazing massage therapist, Kim, brought the pain back to a manageable…
As soon as I felt my shoulder click, I knew I was in trouble. Overall, my body had been doing relatively well recently, without any pain flares. But that subtle feeling in my shoulder let me know the streak was about to come to an end. While I often…
As a teacher, I’m incredibly lucky to have extra time off work around Thanksgiving. It gives me a few days to recharge from the constant chronic fatigue of Ehlers-Danlos syndrome (EDS) before the holiday season kicks into high gear. Since I typically head to my parents’ house, about 45…
Wow, I continue to be overwhelmed by everyone’s responses to my previous two columns about food sensitivities! I had no idea that what I knew was an issue for those of us with Ehlers-Danlos syndrome (EDS) was so prevalent. While these sensitivities can be frustrating at times,…
As I wrote in my last column, I’ve learned that I can’t eat any mammalian products, as they make me quite sick. I’ve never been a big meat eater, so giving up steak and whatnot really wasn’t hard for me. I’ve since found, however, that many meat and dairy…
Wow! I was completely surprised by the overwhelming response to my recent column about my dairy intolerance. While I’ve known for a while that gastrointestinal (GI) upset is an issue for many of us with Ehlers-Danlos syndrome (EDS), I had no idea how many of us dealt with…
If I had to pick a place on my body that would cause me issues with my Ehlers-Danlos syndrome (EDS), it’d basically be anywhere on my right side. I’ve injured my right shoulder, ankle, knee, hip, and hand. Thankfully, my left side hasn’t been nearly as battered…
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