It’s been a few weeks since Spotty received his diagnosis. My vet came out to look at my horse and go over ultrasound images taken by my orthopedic specialist at the referral hospital. We came up with a game plan. Although the doctor who diagnosed him advised six to…
Black and Blue Ribbons - a Column by Karen Del Vecchio
Some days simply suck. There’s no way around it. You get bad news, things don’t go your way, you just have a generally bad day. One particular day a few weeks ago would definitely qualify. I took my current competition horse, Spotty, to an equine veterinary specialist for an evaluation…
One way of managing a chronic disorder, particularly one that affects physical mobility and causes constant pain, is figuring out what treatment works for you. What helps me may not benefit you, and vice versa. I believe that sometimes a little trial and error…
Sometimes, we may have so many levels of embedded issues that it can be difficult to know where to start. For my horse Arti and me, massage and acupressure were critical to physical recovery. I don’t remember how I stumbled upon my first massage therapist, but I’m thankful…
To know me, it’s important that you know a bit about my past and the journey to my current style of Ehlers-Danlos syndrome (EDS) management. So, in my next few columns, I’ll cover my history and how various experiences helped me learn the ways I manage EDS. One…
My 22-year Journey to Diagnosis
Ten years ago, at age 22, I was diagnosed with Ehlers-Danlos syndromes (EDS). I’d known there was something “wrong” with me long before I was 22, but despite having a doctor in the family who had been trying to figure out the mystery with several colleagues since I was…
Recent Posts
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026
- The ‘aches and pains forecast’ that validated my EDS symptoms February 24, 2026
- HSD, hEDS tied to diagnostic delays, poor quality of life in aging women February 19, 2026
- I’m trying different types of physical therapy to keep making progress February 19, 2026
- Genetic changes across 3 biological systems may drive hypermobile EDS February 12, 2026
- Are fatigue, pain, and soreness an EDS flare-up or a winter illness? February 10, 2026
- Global study reveals the complex web of health issues linked to hEDS February 5, 2026
- 73% of EDS patients second-guess pain, often after clinician skepticism: Study January 29, 2026