An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.I wrote last week about how much horseback riding has helped me with body awareness. Another activity that has helped me significantly improve body awareness is Pilates. Pilates also has made me more conscientious while riding, which in turn has had a positive domino effect for me. When I…
Recently, someone mentioned that I seem to have heightened body awareness. I’d never really thought about it, but I guess I do pay attention to how my body moves (or doesn’t), my range of motion, and how different activities affect my pain levels and mobility. I don’t think I…
I rarely wear short-sleeve shirts, but it’s not because of the same reason I often wear pants instead of shorts. Rather, it’s because I sunburn easily. I practically live in sun shirts while working outdoors on the farm. I don’t know how I made it through summer before these…
Some people like summer. Love it even. I’m not one of them. In fact, if I listed the four seasons for their weather attributes, summer would come in a very distant last. I live in the South, where it gets hot, humid, and sticky most of the time from June…
One of the great things about horseback riding is that when done correctly, it requires an enormous amount of body awareness. While many people see a person riding and think the horse is doing all the work while the rider just sits there, it actually couldn’t be further from the…
I realized earlier that I don’t often think of myself as having EDS. It’s not that I don’t recognize or accept that I have it, but that I rarely ever use it to frame how I’m feeling. For example, I experience a lot of EDS symptoms in my…
Wow, did summer sure decide to turn on its furnace overnight here in Virginia. A day ago, it was in the mid-70s and perfect, and today it was 92 F and humid. Let me tell you, I am not a heat or summer person despite having lived most of my…
Last week, I was able to see my massage therapist for the first time in over three months due to the pandemic. About 10 years ago, I learned that massage is an integral part of my pain management. I don’t think I’d gone more than three weeks or a…
One thing that’s both particularly difficult as well as sometimes wonderful about Ehlers-Danlos syndrome (EDS) is that, for the most part, it’s invisible. Except for my bruising, if you look at me, there’s nothing that would stand out and make someone realize that I have a rare genetic disorder.
Last week, I got some disappointing news. My horse Cherry somehow managed to fracture a bone in her foot. She was fine one day, and then the next she came in very lame after being in her field all night. Usually, the most common cause of such a sudden…
Get regular updates to your inbox.