Ehlers-Danlos News
Recent Posts
- ‘Acts of Awareness’ Welcome in May, Marking EDS and HSD Month May 2, 2022
- Organizations Rally to Help Ukrainian Rare Disease Patients April 29, 2022
- ‘Player Like Me’ Showcases Healing Potential of Gaming With EDS April 25, 2022
- Europe Awaits Proposed New Framework for Sharing Health Data April 18, 2022
- Telehealth Added to Latest Digital-friendly NORD State Report Card April 12, 2022
- Edsivo Named Breakthrough Therapy by FDA for COL3A1-positive vEDS April 11, 2022
- Treating Very Rare EDS Type Early May Help Prevent Complications April 4, 2022
- Successful Treatment of Rare vEDS Case With TAK Reported in Study March 28, 2022
- Increased Education Crucial to Improving Rare Disease Care, Survey Finds March 21, 2022
- RaDaR Serves as Starting Point for Creating Rare Disease Registry March 14, 2022