Ana Pena, PhD,  —

Women with hypermobile Ehlers-Danlos syndrome have a smaller cortical bone — the outer part of the bone, essential for its resistance and strength — and for that reason are likely more prone to fractures, a study suggests. The findings were reported in “Higher fracture prevalence and smaller…

Genetic testing is critical to get an accurate diagnosis of vascular Ehlers-Danlos syndrome (vEDS) as clinical criteria alone is insufficient, and given its overlap with other disorders, suggests a real-world study carried out at American and European institutions. The research also highlights the importance of getting a trained geneticist…

Acer Therapeutics announced that although it is going through a restructuring process, it stays committed to advancing the development of Edsivo (celiprolol), a potential treatment for vascular Ehlers-Danlos syndrome (vEDS). In June, the U.S. Food and Drug Administration (FDA) issued a complete response letter…

There is no scientific evidence supporting a clinical benefit of physical or mechanical therapies to treat lower limb problems in children with hypermobile Ehlers Danlos syndrome (hEDS), according to a pooled analysis of clinical trials. These findings highlight the need for more quality clinical studies geared specifically toward children…