May is the month for the global Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD) community to team up to raise awareness and share experiences. In the U.S., The Ehlers-Danlos Society proposes a number of ways to get involved, including participating in walks and fundraising events, illuminating landmark…
People with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) experience an earlier onset of pain, which typically affects more body areas and with a longer duration, than individuals with pain due to other conditions. Those are the findings of a new study by researchers in Sweden, who…
Insomnia and depression strongly contribute to the chronic fatigue that affects about 80% of adults with hypermobile Ehlers-Danlos syndrome (hEDS), interfering with their daily functioning and mental health, a study in Italy shows. The study compared fatigue between people with hEDS and those with another condition that also affects…
A 25-year-old woman was diagnosed with vascular Ehlers-Danlos syndrome (vEDS) after six years of multiple bowel perforations and aneurysms (abnormal bulges in blood vessels walls), according to a case study from Lebanon. These episodes required urgent, invasive surgeries, removal of parts of the intestine, two intensive care unit stays,…
Most children and young adults with hypermobile Ehlers-Danlos syndrome (hEDS) have cardiovascular issues and dysfunction of their autonomic nervous system, or the network of nerves that control unconscious processes, which in turn negatively affects their quality of life, according to a recent study. Notable issues with the autonomic nervous…
After experiencing a ruptured aneurysm in the hepatic artery — a blood vessel that supplies the liver — years after surgery for a perforated bowel, a 25-year-old man in Japan was diagnosed with vascular Ehlers-Danlos syndrome (vEDS). According to the report detailing his case, the man had been given…
While historically avoided by people with Ehlers-Danlos syndrome (EDS), joint surgery is generally associated with high rates of patient satisfaction and its chance of success is greater when there is an established EDS diagnosis, a study in France has found. Rate of reoperations among the 69 people with non-vascular…
A procedure called arthroscopic stabilization is the most common surgical treatment for shoulder joint instability in people Ehlers-Danlos syndrome (EDS) and joint hypermobile syndrome (JHS). Open surgeries are less commonly performed. Both EDS and JHS affect the connective tissue and are marked by hypermobile joints, meaning they move…
A combination of surgery, radiotherapy, and hormone therapy successfully treated early-stage breast cancer in a 46-year-old woman with vascular Ehlers-Danlos syndrome (vEDS) in Japan. People with vEDS have fragile blood vessels prone to bleeding and delayed wound healing. Due to these risks, the woman underwent surgery for partial (instead…
Children and adolescents with hypermobile Ehlers-Danlos syndrome (hEDS) may not have a higher risk of developing aortic dilation, a condition wherein a portion of the artery that carries blood from the heart to the body is enlarged. That’s according to a study in the U.S. that compared the rates…
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