Insomnia and depression strongly contribute to the chronic fatigue that affects about 80% of adults with hypermobile Ehlers-Danlos syndrome (hEDS), interfering with their daily functioning and mental health, a study in Italy shows. The study compared fatigue between people with hEDS and those with another condition that also affects…
A 25-year-old woman was diagnosed with vascular Ehlers-Danlos syndrome (vEDS) after six years of multiple bowel perforations and aneurysms (abnormal bulges in blood vessels walls), according to a case study from Lebanon. These episodes required urgent, invasive surgeries, removal of parts of the intestine, two intensive care unit stays,…
Most children and young adults with hypermobile Ehlers-Danlos syndrome (hEDS) have cardiovascular issues and dysfunction of their autonomic nervous system, or the network of nerves that control unconscious processes, which in turn negatively affects their quality of life, according to a recent study. Notable issues with the autonomic nervous…
After experiencing a ruptured aneurysm in the hepatic artery — a blood vessel that supplies the liver — years after surgery for a perforated bowel, a 25-year-old man in Japan was diagnosed with vascular Ehlers-Danlos syndrome (vEDS). According to the report detailing his case, the man had been given…
While historically avoided by people with Ehlers-Danlos syndrome (EDS), joint surgery is generally associated with high rates of patient satisfaction and its chance of success is greater when there is an established EDS diagnosis, a study in France has found. Rate of reoperations among the 69 people with non-vascular…
A procedure called arthroscopic stabilization is the most common surgical treatment for shoulder joint instability in people Ehlers-Danlos syndrome (EDS) and joint hypermobile syndrome (JHS). Open surgeries are less commonly performed. Both EDS and JHS affect the connective tissue and are marked by hypermobile joints, meaning they move…
A combination of surgery, radiotherapy, and hormone therapy successfully treated early-stage breast cancer in a 46-year-old woman with vascular Ehlers-Danlos syndrome (vEDS) in Japan. People with vEDS have fragile blood vessels prone to bleeding and delayed wound healing. Due to these risks, the woman underwent surgery for partial (instead…
Children and adolescents with hypermobile Ehlers-Danlos syndrome (hEDS) may not have a higher risk of developing aortic dilation, a condition wherein a portion of the artery that carries blood from the heart to the body is enlarged. That’s according to a study in the U.S. that compared the rates…
People with Ehlers-Danlos syndrome (EDS) frequently experience urinary problems, most commonly urinary incontinence and pelvic organ prolapse, according to a review study. Urinary incontinence is the involuntary release of urine. Pelvic organ prolapse occurs when pelvic organs, such as the bladder, parts of the large intestine, or reproductive organs,…
Women with vascular Ehlers-Danlos syndrome (vEDS) are at high risk of uterine rupture, issues in blood vessels, and death during pregnancy, particularly in the period around delivery. “To avoid expulsive efforts [active pushing], a caesarean section should be scheduled at 37 weeks of gestation,” researchers wrote. The study, “…
Get regular updates to your inbox.