Andrea Lobo, PhD, science writer —

A procedure called arthroscopic stabilization is the most common surgical treatment for shoulder joint instability in people Ehlers-Danlos syndrome (EDS) and joint hypermobile syndrome (JHS). Open surgeries are less commonly performed. Both EDS and JHS affect the connective tissue and are marked by hypermobile joints, meaning they move…

A combination of surgery, radiotherapy, and hormone therapy successfully treated early-stage breast cancer in a 46-year-old woman with vascular Ehlers-Danlos syndrome (vEDS) in Japan. People with vEDS have fragile blood vessels prone to bleeding and delayed wound healing. Due to these risks, the woman underwent surgery for partial (instead…

Children and adolescents with hypermobile Ehlers-Danlos syndrome (hEDS) may not have a higher risk of developing aortic dilation, a condition wherein a portion of the artery that carries blood from the heart to the body is enlarged. That’s according to a study in the U.S. that compared the rates…

People with Ehlers-Danlos syndrome (EDS) frequently experience urinary problems, most commonly urinary incontinence and pelvic organ prolapse, according to a review study. Urinary incontinence is the involuntary release of urine. Pelvic organ prolapse occurs when pelvic organs, such as the bladder, parts of the large intestine, or reproductive organs,…

Women with vascular Ehlers-Danlos syndrome (vEDS) are at high risk of uterine rupture, issues in blood vessels, and death during pregnancy, particularly in the period around delivery. “To avoid expulsive efforts [active pushing], a caesarean section should be scheduled at 37 weeks of gestation,” researchers wrote. The study, “…

A creatine monohydrate supplement eased chronic pain and fatigue in a woman with hypermobile Ehlers-Danlos syndrome (hEDS), a case report said. Creatine monohydrate has well-established benefits to muscle strength and overall athletic performance. Creatine — derived from three amino acids, the building blocks of proteins — is naturally…

Jaw pain, fatigue, and other symptoms of temporomandibular disorders (TMD) are quite common in women with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD), according to a recent study from Sweden and Finland. TMD are conditions affecting the joint that connects the jawbone to the skull. They may…

Being male and having certain facial features, high blood pressure, and some disease-causing mutations all are risk factors for the occurrence of major blood-vessel-related events and/or an early age at the time of their onset among people with vascular Ehlers-Danlos syndrome (vEDS), a…

A 33-year-old woman with hypermobile Ehlers-Danlos syndrome (hEDS) experienced less systemic (body-wide) pain and inflammation, as well as greater overall functioning after starting treatment with omalizumab, a medication for asthma and allergies, according to a recent report. Omalizumab is an injectable therapy that blocks the interaction of immunoglobulin…

Zevra Therapeutics is adding Edsivo (celiprolol), an experimental therapy for vascular Ehlers-Danlos syndrome (vEDS), to its clinical pipeline of rare diseases, as part of an agreement in which the company will acquire Acer Therapeutics, The new deal means Zevra will take over the ongoing Phase…