Andrea Lobo, PhD, science writer —

Being male and having certain facial features, high blood pressure, and some disease-causing mutations all are risk factors for the occurrence of major blood-vessel-related events and/or an early age at the time of their onset among people with vascular Ehlers-Danlos syndrome (vEDS), a…

A 33-year-old woman with hypermobile Ehlers-Danlos syndrome (hEDS) experienced less systemic (body-wide) pain and inflammation, as well as greater overall functioning after starting treatment with omalizumab, a medication for asthma and allergies, according to a recent report. Omalizumab is an injectable therapy that blocks the interaction of immunoglobulin…

Zevra Therapeutics is adding Edsivo (celiprolol), an experimental therapy for vascular Ehlers-Danlos syndrome (vEDS), to its clinical pipeline of rare diseases, as part of an agreement in which the company will acquire Acer Therapeutics, The new deal means Zevra will take over the ongoing Phase…

A 28-year-old woman presented with spontaneous papillary muscle rupture (PMR), a potentially fatal heart complication, likely caused by vascular Ehlers-Danlos syndrome, a few days after giving birth. According to researchers, this is the first reported case of rupture of two papillary muscles, which are critical for the function of…

Patients with hypermobile Ehlers-Danlos syndrome (hEDS) report more voice, upper airway, and swallowing problems than the general population, a study found. A similar higher prevalence was found in people with hypermobility spectrum disorders (HSD). That’s according to the study, “Laryngological Complaint Prevalence in Hypermobile Ehlers-Danlos or Hypermobility Spectrum…

Adolescents with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) are twice as likely to have active migraine than those without the diseases, according to a recent study in Israel. Migraine is a type of headache that can cause severe throbbing pain or a pulsing sensation, usually on…

Women with Ehlers-Danlos syndrome (EDS) are at a higher risk for complications during pregnancy than other women, including poorer fetal growth, preterm delivery, and postpartum bleeding, a study using a large U.S. database reports. Likewise, these patients were more likely to deliver via cesarean section. But a number of…