I feel like my body’s done a flip-flop. Usually my right side causes me the most problems. I have a…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I’ve said many times that chronic fatigue is one of the toughest parts of living with Ehlers-Danlos syndrome…
“Hey, how did you get that bruise on your face?” I’ve probably gotten that question at least a dozen times…
Over the past year and a half or so, my horse Cherry has been through a lot. Back in…
Heading back to work at school at the end of summer is always an adjustment. As a college counselor and…
A few weeks ago, while walking through the barn at the farm where I live, I felt a twinge…
It’s hard to believe that I head back to work soon as a college counselor and history teacher in high…
I was able to take a few days recently to visit my extended family. It’s always nice to see my…
Note: This column describes the author’s own experiences with anti-inflammatories. Not everyone will have the same response to treatment. Consult…
I’ve mentioned before that I’ve never met anyone else with Ehlers-Danlos syndrome (EDS) in person. That’s one of the…