Sometimes I’m baffled by my body’s connections and the way it compensates for issues related to my Ehlers-Danlos…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Karen Del Vecchio
I’ve recently been tapping into a new level of body awareness — or at least trying to. I’ve previously written…
I recently wrote about a strange sensation of energy I experienced during a massage, and it’s been really neat hearing…
“When you’re not used to hurting all the time anymore, it really sucks when you do, doesn’t it?” Those are…
I’ve been managing some unusual pain issues over the past few weeks. It’s rare that I don’t feel better…
I’ve been managing some funky, twisted body things recently. One of those has been manifesting in my back, and…
I usually know when I’m crooked. When my body has been pulled out of alignment in a variety of…
I’ve often said that chronic fatigue is the toughest part of having Ehlers-Danlos syndrome. It’s exhausting being tired…
I’m pretty sure that if I were an instrument, I’d be an accordion: stretched out on one side, squinched up…
As a teacher and postgraduate counselor, I’m used to going nonstop this time of year, but I still try to…