Is it spring yet? Like for many people in the U.S., the weather in Virginia has been less than stellar…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Over the years, the position in which I’m most comfortable sleeping at night has changed. For most of my life,…
I’m so lucky to be able to have massage therapy every other week. While I wasn’t diagnosed with Ehlers-Danlos syndrome…
I really need to stop doing stupid things and hurting myself. Sheesh. Last September, I…
After two weeks of virtual learning to avoid the post-holiday spike in COVID-19 cases, students in the school where I…
I don’t think I’m alone in hoping that 2021 would be a better year than last, but it’s certainly off…
I’m certain I don’t have to tell anyone reading this column that having Ehlers-Danlos syndrome (EDS) means overcoming a lot…
As is common for someone with Ehlers-Danlos syndrome (EDS), I’ve done plenty of physical therapy (PT). After my diagnosis…
I love the holidays, especially Christmas. This year is certainly different in just about every way, except for one: If…
Last week, I had another follow-up appointment for my finger. In late September, I had surgery to repair a…