Although sleeping helps me feel my best, it is also my greatest adversary. Like many people with Ehlers-Danlos syndrome,…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Sometimes I wonder how much of my Ehlers-Danlos syndrome (EDS) is visible to others. Apart from the obvious things, like…
Several years ago I learned an important distinction about positivity. For a long time, I had thought that positivity meant…
The past few weeks have been a whirlwind. As part of my job as a college counselor, I’m working with…
I know I write frequently about my massages, but that’s because they are the only treatment available to me,…
After almost six weeks of being unable to get a massage because my therapist was injured, I finally got…
I haven’t been sleeping restfully this week. I’ve been doing that whole wake-up-and-roll-back-over thing seemingly a dozen times a night.
Last week, I went to the dentist for the first time since the beginning of the pandemic. I had my…
Throughout the past week, the weather has been gorgeous. After weeks of seemingly endless rain, terrible mud that’s taken a…
This week has been busy. After all the rain we’ve had in the mid-Atlantic region recently, the…