Here in Virginia, all nonessential businesses have been closed for several weeks. Frustratingly, I’m unable to access my two main…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Like everyone right now, my life and my therapies have been upended by the coronavirus. While it’s easy to…
In this time of uncertainty, stress and anxiety (a very common co-diagnosis with Ehlers-Danlos syndrome) management are critical to…
It’s hard to believe that only a week has passed since I wrote my last column. Everything is…
One of the many unusual issues that come with having Ehlers-Danlos syndrome is the way that I can injure myself…
As I’ve mentioned in previous columns my shoulder is probably the most damaged…
I love snow. It doesn’t snow very often where I live, but I sure enjoy when it does. We got…
Presidents Day is a nice three-day weekend to have in the middle of winter and a good time…
We’ve had a very strange “winter” so far here in the mid-Atlantic. I used quotation marks because we’ve barely…
I try hard not to be negative or to complain too much. Overall, my Ehlers-Danlos syndrome (EDS) is not…