While you likely know by now that I have horses, you may not realize that I live on a…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I’m not good at accepting my limitations. While I’ve gotten better about it over the years, I’m stubborn, and if…
Back in December I started Pilates. Wow. Seriously, I love it. I never imagined that I’d enjoy working out in…
It’s been a few weeks since Spotty received his diagnosis. My vet came out to look at my horse…
Some days simply suck. There’s no way around it. You get bad news, things don’t go your way, you just…
One way of managing a chronic disorder, particularly one that affects physical mobility and causes constant pain, is…
Sometimes, we may have so many levels of embedded issues that it can be difficult to know where…
To know me, it’s important that you know a bit about my past and the journey to my…
My 22-year Journey to Diagnosis
Ten years ago, at age 22, I was diagnosed with Ehlers-Danlos syndromes (EDS). I’d known there was something “wrong”…