Walking through the kitchen at my mom’s house recently, I was too busy watching her new kitten, Phineas, play to…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
It’d been a great day, and despite my Ehlers-Danlos syndrome (EDS), I wasn’t feeling particularly sore. My brother and…
Each morning after I wake up, I take stock of how I feel. Is my back stiff? Does it hurt?…
Any morning I wake up and see a heat advisory on my phone’s weather app, I know I’m in for…
I remember watching the ball fly past my last defender and realizing I had to choose: I could either run…
Summer means I have a break from teaching, which is great for rejuvenating myself for the next school year. But…
Over the years, I’ve found a few things that help me manage Ehlers-Danlos syndrome (EDS). Readers of this…
Sometimes the pain from Ehlers-Danlos syndrome (EDS) is just weird. I don’t have a better way to describe it.
While driving to work recently, I realized I was in one of my Ehlers-Danlos syndrome “twisted pretzel” phases. That’s what…
A few weeks ago, I wrote about how I wound up with a massive bruise on my left arm,…