Karen Del Vecchio,  —

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.

Articles by Karen Del Vecchio

What’s Up With My Unusual Food Sensitivities?

Wow! I was completely surprised by the overwhelming response to my recent column about my dairy intolerance. While I’ve known for a while that gastrointestinal (GI) upset is an issue for many of us with Ehlers-Danlos syndrome (EDS), I had no idea how many of us dealt with…