The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
Articles by Mary Chapman
People who have Ehlers-Danlos syndrome (EDS) sometimes need to undergo surgery to fix joint problems or treat fractures.
If you have Ehlers-Danlos syndrome (EDS), you likely know that the laxity of your tissues, and other symptoms,…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Because many members of the Ehlers-Danlos syndrome (EDS) community are overwhelmed and at home during the global COVID-19 pandemic, the…
The Ehlers-Danlos Society is offering a series of virtual events for community members to express concerns, ask questions, and…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
To discuss the latest information about Ehlers-Danlos syndrome (EDS) and related disorders, patients and their families, scientists, and clinicians…
The Ehlers-Danlos Society has helped to launch a center at Indiana University Health (IU Health) to advance research,…