Patricia Inácio, PhD,  science writer—

People with Ehlers-Danlos syndrome (EDS) living in the U.S. face high healthcare costs, with the annual median out-of-pocket expense exceeding $13,000, a study found. The findings “highlight the magnitude of the burden of health care spending on patients with EDS,” with “both direct and indirect costs of accessing and…

Stretch marks in the esophagus, the muscular tube that carries food and liquid into the stomach, are a potential new sign of hypermobile Ehlers-Danlos syndrome (EDS), according to a case report from Germany describing a woman in her 20s with hEDS — the most common form of the…

Constipation and trouble swallowing are common digestive symptoms in children and young adults with joint hypermobility syndrome or hypermobile Ehlers-Danlos syndrome (hEDS), according to a single-center study in the U.S. Also, about 20% of patients had eosinophilic esophagitis, an allergic reaction in the esophagus — the muscular tube that…

Temporomandibular disorders, or conditions that affect the jaw joint and muscles, are highly prevalent among people with classical Ehlers-Danlos syndrome (cEDS), hypermobile EDS (hEDS) and hypermobility spectrum disorders in Sweden, a study reports. While conservative treatments resulted in positive outcomes, more than half the patients who were asked said there…

A woman diagnosed with the classical type of Ehlers-Danlos syndrome (EDS) showed features of vEDS, or vascular EDS — a subtype that affects blood vessels and is considered the most severe form of the disease — according to a case study. Researchers say this unusual case highlights the importance of…

Clinicians should test for hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) if their patients continue to show persistent symptoms after infection with SARS-CoV-2, the virus that causes COVID-19, according to a small report. “We conclude that hEDS/HSD should be considered … especially in patients of female gender…

Clear clinical guidelines and workshops about how to treat and manage children with Ehlers-Danlos syndrome (EDS) to speed diagnosis and improve care are needed, say physicians who took part in an online survey in the U.S. The study, “Barriers to the Diagnosis, Care, and Management of…

Women with hypermobile Ehlers-Danlos syndrome (hEDS) experience rear foot pain — pain in the back of the heel — more frequently than do those with rheumatoid arthritis (RA) or systemic lupus erythematosus (SLE), two other rheumatic diseases, a new study reported. In addition, ankle pain was found to…

Having elongated and twisted arteries — called tortuous arteries — in the neck is tied to greater cardiovascular risk in people with vascular Ehlers-Danlos syndrome (vEDS), a new study reports. Moreover, the rate of cardiovascular events was higher among vEDS patients younger than 40 with high-risk mutations in the…

People with classical Ehlers-Danlos syndrome (cEDS) or hypermobile EDS (hEDS) commonly have disorders affecting the jaw muscles and often experience chronic pain, a study reported. Moreover, according to researchers, many cEDS and hEDS patients among the study population were found to have psychological distress. Specifically, more than 50% reached the threshold…