Patricia Inácio, PhD,  science writer—

Findings from a tailored, online Pilates program suggest that participating in exercise may help people with hypermobile Ehlers–Danlos syndrome (hEDS) and those with hypermobile spectrum disorder (HSD) feel stronger and more empowered. An “online exercise may be a valuable modality to help people with chronic conditions remain active,” wrote…

Mental health concerns, including depression and anxiety, are highly prevalent among people with Ehlers-Danlos syndrome (EDS) and generalized hypermobility spectrum disorder (G-HSD), according to a retrospective study. “Given the prevalence of mental health concerns in this population, it is critical to provide mental health support to patients with EDS…

People with Ehlers-Danlos syndrome (EDS) can safely undergo total joint replacement surgery and achieve significant gains, among them “[improved] quality of life in … patients who had marked arthritis,” according to a new review. However, EDS patients who have this procedure — known as arthroplasty, it’s when a joint such…

People with Ehlers-Danlos syndrome (EDS) living in the U.S. face high healthcare costs, with the annual median out-of-pocket expense exceeding $13,000, a study found. The findings “highlight the magnitude of the burden of health care spending on patients with EDS,” with “both direct and indirect costs of accessing and…

Stretch marks in the esophagus, the muscular tube that carries food and liquid into the stomach, are a potential new sign of hypermobile Ehlers-Danlos syndrome (EDS), according to a case report from Germany describing a woman in her 20s with hEDS — the most common form of the…

Constipation and trouble swallowing are common digestive symptoms in children and young adults with joint hypermobility syndrome or hypermobile Ehlers-Danlos syndrome (hEDS), according to a single-center study in the U.S. Also, about 20% of patients had eosinophilic esophagitis, an allergic reaction in the esophagus — the muscular tube that…

Temporomandibular disorders, or conditions that affect the jaw joint and muscles, are highly prevalent among people with classical Ehlers-Danlos syndrome (cEDS), hypermobile EDS (hEDS) and hypermobility spectrum disorders in Sweden, a study reports. While conservative treatments resulted in positive outcomes, more than half the patients who were asked said there…

A woman diagnosed with the classical type of Ehlers-Danlos syndrome (EDS) showed features of vEDS, or vascular EDS — a subtype that affects blood vessels and is considered the most severe form of the disease — according to a case study. Researchers say this unusual case highlights the importance of…

Clinicians should test for hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) if their patients continue to show persistent symptoms after infection with SARS-CoV-2, the virus that causes COVID-19, according to a small report. “We conclude that hEDS/HSD should be considered … especially in patients of female gender…

Clear clinical guidelines and workshops about how to treat and manage children with Ehlers-Danlos syndrome (EDS) to speed diagnosis and improve care are needed, say physicians who took part in an online survey in the U.S. The study, “Barriers to the Diagnosis, Care, and Management of…