Every summer, I face the same conundrum: Do I wear shorts and skirts, or not? My answer tends to vary, but this year, I bought myself a few new pairs of shorts that I’ve already worn several times. I’m not sure I had any shorts I actually liked last…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
I suspect that many of us with chronic conditions use self-deprecating humor to cope with our frustrations. For me, it’s a way to show others that while my Ehlers-Danlos syndrome (EDS) can be challenging sometimes, it won’t keep me from doing what I want to do. A few…

Now that this crazy school year is out and I have a few weeks off, I’ve tried to come up with a plan for the summer to help me reset and recharge so that I can be ready for whatever the upcoming school year throws at me. With COVID-19…
Hello, readers! I’m so glad to be back with you all. I realize that I suddenly vanished from my column last fall, but now that the school year is finished, I’ve returned. This past year of teaching was the hardest one I’ve experienced, and I had to make some tough…
I must have slept funny last week because I woke up one day with stiff and sore muscles in my neck that turned into quite a headache. I sometimes get referred pain in my neck because of a sports injury I sustained to my right shoulder as a…
When I look back at all the physical activities I used to do growing up, it’s hard to believe I was never scared of injuring myself. I can no longer imagine myself in the thick of a physical soccer game without also thinking about getting hurt. Back then, I was…
Anyone who rides a horse knows that no matter how careful you are, sometimes you’re going to fall. I had my first fall in a year a couple weeks ago. Cherry has been an exceptionally well-behaved and safe horse for me, but falling is part of riding an animal that…
My Old Shoulder Injury Flared Up
Well, we’re back to school and we’re rolling! It’s hard to believe that students have been back for nearly three weeks, and I’ve been back for nearly six. I really enjoy my job teaching history and doing college counseling with juniors and seniors, but it can be stressful at…
It’s that time of year again! Summer just flew by, and before I knew it, I was back at work, which for me is school. As a high school history teacher and college counselor, my downtime is minimal when classes are in session. When students recently returned, we were off…
I hadn’t slept well in weeks. I kept doing that whole “wake up, turn over, try to get comfortable” thing, but nothing worked. As someone who manages chronic fatigue due to Ehlers-Danlos syndrome (EDS), this sleep interruption was really difficult. In addition, I kept waking up with extra stiffness…
The past few weeks have been busy, yet so much fun. I was recently able to visit my grandparents, who live out of state, for the first time since the pandemic started. Now that they and the rest of my extended family are vaccinated, we were finally able to get…
Summer is in full swing here, and one fun part for me is seasonal allergies, or hay fever. I deal with both indoor and outdoor allergies year-round, but they tend to be worse in the summer. I’ve noticed over the years that a weather front moving through can sometimes…
It’s crazy how sometimes time seems to simultaneously crawl and fly by. It feels like just yesterday when I was headed to work as a high school history teacher and a college counselor. On the flip side, I’m certain that was a year ago. Although I work longer than most…
Recent Posts
- Dentists may spot EDS signs during routine exams, study finds April 23, 2026
- Attention, cognitive issues tied to pain, body regulation problems in hEDS April 16, 2026
- Why I am no longer thinking of myself as ‘a mess’ due to EDS April 14, 2026
- New study suggests hypermobile EDS and HSD may share a disease spectrum April 9, 2026
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026