While in the mindset of slowing down and allowing myself time to recharge, I decided to take a short vacation. I rarely take time out because I always have so much going on. But I reached out to my two closest friends from college and asked if they wanted…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
As I walked outside and felt the heat and humidity envelop me, I realized that summer has arrived early here in Virginia. Summer humidity is sweltering, and so far this year, we’ve been breaking both heat and drought records, which is a really tough combo when, like me, you have…

Taking Time to Recharge
Summer and fall have been a nonstop whirlwind. A few weeks after graduation (I work as a college counselor at a private high school), the owner of the farm where I live had major knee surgery. That put me on farm duty for several months. My brother got married. And…
In the equestrian sport of eventing, we use a lot of gear. One piece of that puzzle is the safety gear we wear, particularly in the cross-country phase, where we jump solid obstacles in open fields or in the woods. Anytime a horse and rider are out on cross-country, riders…
Recently, Ehlers-Danlos syndrome (EDS) made news headlines. That doesn’t happen often. Actress Lena Dunham announced that she has EDS in response to questions about a photo of her using a mobility aid. While I’d heard her name, I knew little about the actress, but I want to give her…
I’ve previously discussed how having Ehlers-Danlos syndrome (EDS) means that I often have to take side roads to reach my goals or engage in activities I enjoy. While I used to find that immensely frustrating, I now view it as another challenge to face head-on. In my work with…
Generally speaking, showing my horse is great. The shows are exhausting, but they are so much fun that I do them anyway. A recent show was no different. Even though riding is an individual sport, team members all support one another.
It turns out the crazy busy week paid off. I spent last weekend at a horse show in North Carolina, and Cherry and I had an amazing time! It was our first time showing at the Beginner Novice level, where the jumps are a maximum height of 2 feet…
Surviving the Chaos of October
Fall in the college counseling profession is like running the proverbial rat race. There simply aren’t enough hours in the day for the amount of work that needs to be done. Students procrastinate and need help at the last minute. Students who don’t…
I’ve made a lot of progress in learning how to manage Ehlers-Danlos syndrome (EDS), but I still experience pain flares. My most recent flare improved dramatically after a massage. I was mostly back to normal (at least my version of normal), but then I went to a conference. I…
The past few weeks have been a total whirlwind. I’m a college counselor at a local high school, so September and October are the busiest months for me. They lead up to Nov. 1, which is a major college application deadline. I’m slammed with work and also trying to train…
Life never seems to slow down. Every time I think I have time to take a breath and catch up around the house (you know, cleaning, laundry, dishes …), it’s bedtime and I still have a long list of uncompleted chores. That used to cause…
So after last week’s frustration, this week was about refocusing and figuring out what my “side road” would look like. I don’t respond well to the feeling that my Ehlers-Danlos syndrome (EDS) is keeping me from doing something…
Recent Posts
- Psychiatric drugs don’t affect heart rhythms in hEDS, study finds June 25, 2026
- hEDS patients report less pain with long-term medical cannabis use June 18, 2026
- I’m trying to be patient with my healing process under an unusually hot sun June 16, 2026
- hEDS study points to pain, movement fears as quality-of-life hurdles June 11, 2026
- Eating challenges common among women with self-reported EDS June 4, 2026
- I know my EDS, so advocating for myself after my injury was the right call June 2, 2026
- Hormone blocker reduces ruptured blood vessel risk in VEDS mouse study May 28, 2026
- My latest EDS pain flare felt different — in the best way May 26, 2026
- Celiprolol may help lower risk of fatal vascular complications in vEDS May 21, 2026
- When it comes to EDS issues, there’s often no rhyme or reason May 19, 2026