Dealing with Tough Days and Their Accompanying Stress
Some days simply suck. There’s no way around it. You get bad news, things don’t go your way, you just have a generally bad day. One particular day a few weeks ago would definitely…
Black and Blue Ribbons
— Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Featured Post
My unique EDS needs make it crucial to advocate for myself
It’s been an interesting couple of weeks as I recover from broken ribs and an injured diaphragm. I’m trying to be patient with the healing process, but that’s not something I’m good at! I’d…
Read more
