I wrote about it in a previous column, but seriously, how did summer go by so quickly? Now don’t get me wrong, I’ll be thrilled when fall and winter get here — I’d rather have cold weather than hot any day — but it seems as if the summer’s…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Sometimes it’s hard to explain what I mean when I say I feel like a twisted pretzel. While my physical therapist (PT) and massage therapist understand, they’re also trained to look for such anomalies. I don’t think it’s something the average person can see, but I definitely feel it when…

I can’t believe it’s the middle of August. Where did the summer go? On Monday, I returned to work as a college counselor for high school students, yet graduation seems as if it were yesterday. I’ve been super busy this summer, but it’s been good. …
A couple of months ago, I started to reduce my dairy intake simply because I’m not a fan of factory farming practices. I hadn’t intended to stop eating dairy altogether, but I wanted to choose produce from smaller and more humane farms. I had noticed…
I wrote last week’s column about Wunder-duck early, as my brother was getting married and I knew the occasion would be semi-chaotic. And so it was, but it was wonderfully semi-chaotic. I got to spend five…
While I love virtually all animals, I’m not the biggest fan of the Muscovy ducks that live on the farm. Well, I should clarify that: I’m pretty entertained by the ducks themselves, but I’m getting tired of cleaning and dumping the horses’ water troughs because the ducks took a…
I realize that in most of my columns I’ve talked about my injured ankle and knee, as those are the wounds I’ve been having the most trouble with following my fall off Spotty in November. Honestly, though, the joint that by far tends to cause me the most trouble…
The past two weeks have been a bit crazy. The owner of the farm where I live had ACL and meniscus reconstruction surgery, so I’ve been doing more farm chores, like I do when she’s away. As I’ve talked about in earlier…
Last week, I shared a positive update about my new horse, Cherry. A few days later, Spotty had his six-month checkup for his ligament injury. We got good news from the vet! He’s healing well enough that we can move to the next phase of his rehab,…
Last weekend was my first show after falling off my horse last November and badly spraining my right ankle and left MCL. It also was my first show with my new horse, Cherry.
Pants. For many years, women rallied for the ability to wear pants instead of skirts and dresses. As an extremely active individual, most of the time I fall into the category of women who prefer to wear pants rather than skirts. I get tired…
Balancing Sleep and a Busy World
Perhaps one of the toughest things about Ehlers-Danlos syndrome (EDS) is the chronic fatigue. It’s invisible, so those around you often don’t understand, and we live in a fast-paced world where there just aren’t enough hours in the day. I work full time as a college counselor at a…
As I’ve shared before, Pilates has been an enormous help in managing my Ehlers-Danlos syndrome (EDS). Although I was introduced to it as recently as December, I have noted improvements in my pain level after only a few sessions. The fact that I can actually do Pilates doesn’t make…
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