An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.This week has been busy. After all the rain we’ve had in the mid-Atlantic region recently, the ground is soaking wet, but we’ve finally had a few days in a row without rain, and the sun has been shining. It’s been amazing! I’ve tried…
This school year has been unique, to say the least. As a high school teacher and college counselor, I’ve been lucky to work at an institution that has made an effort to allow everyone to continue attending in person. We have numerous and extensive measures in place that have…
Is it spring yet? Like for many people in the U.S., the weather in Virginia has been less than stellar lately. We’ve had record-breaking rainfall, and while I’m thankful we’ve been spared the ice storms and frigid conditions of other states, it’s still pretty miserable here. The last two weeks,…
Over the years, the position in which I’m most comfortable sleeping at night has changed. For most of my life, I could only sleep on my stomach. After I was diagnosed and my pain level became more manageable, I slept primarily on my back. Recently, for whatever reason, I seem…
I’m so lucky to be able to have massage therapy every other week. While I wasn’t diagnosed with Ehlers-Danlos syndrome (EDS) until I was 22 and didn’t start regular massages until several years after that, I’ve since learned that they are critical to my well-being and pain…
I really need to stop doing stupid things and hurting myself. Sheesh. Last September, I badly broke my finger and had to have surgery. I now sport a plate and six screws in my right ring finger. Then, just a…
After two weeks of virtual learning to avoid the post-holiday spike in COVID-19 cases, students in the school where I work returned to in-person learning last week. I was nervous about it at first, as I’d gotten used to my little bubble at home and on the farm over the…
I don’t think I’m alone in hoping that 2021 would be a better year than last, but it’s certainly off to an interesting start. I work as a college counselor and history teacher at a high school, and my students are currently taking classes online. Although we managed to have…
I’m certain I don’t have to tell anyone reading this column that having Ehlers-Danlos syndrome (EDS) means overcoming a lot of hurdles and other negative things. These include chronic pain, fatigue, ease of injury, gastrointestinal issues, anxiety and other mental health concerns — and those are just the start…
As is common for someone with Ehlers-Danlos syndrome (EDS), I’ve done plenty of physical therapy (PT). After my diagnosis at 22, I was referred to PT to work on many long-standing problems that had never been resolved because we weren’t viewing things in the context of EDS. These issues…
Get regular updates to your inbox.