An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.Every time I think I’ve gotten a handle on the patterns of my Ehlers-Danlos syndrome (EDS), I’m pretty sure the universe laughs at me. Oh, you think you have it figured out? What about this? That’s pretty much what happened last week when I found myself surprised following a…
One thing I know for sure is that I have a much higher pain tolerance than most people. I guess that’s probably true for most people who manage chronic pain. They either learn to deal with it as best they can or they can’t function. What I didn’t consider…
The past few weeks have been a whirlwind. A couple of weeks ago, for instance, I went out of town for a funeral and then flew directly from there to a conference, where I spent a few days before returning home. The result from that travel? Exhaustion, a cold, and…
I feel like my body’s done a flip-flop. Usually my right side causes me the most problems. I have a badly damaged shoulder, hip, finger, hand, and ankle, all on my right side. My left side is normally the “good” one, with only occasional flare-ups. In the…
I’ve said many times that chronic fatigue is one of the toughest parts of living with Ehlers-Danlos syndrome (EDS). It’s so tough to wake up just as exhausted as I was when I went to sleep. I’ve noticed recently, though, that my fatigue is a little bit…
“Hey, how did you get that bruise on your face?” I’ve probably gotten that question at least a dozen times in the past few days, and I’m sure many more wanted to ask me but didn’t. It’s not a big bruise — maybe the size of a dime — on…
Over the past year and a half or so, my horse Cherry has been through a lot. Back in December of 2021, we found out she had some pastern arthritis going on, but that wasn’t unusual for a horse then 14 years old. We helped her with anti-inflammatory medication…
Heading back to work at school at the end of summer is always an adjustment. As a college counselor and high school history teacher, having summers off is great, but it means quickly getting back into the swing of things. I try to make the most of my time during…
A few weeks ago, while walking through the barn at the farm where I live, I felt a twinge in the bottom of my right foot. I ignored it, figuring I’d probably just taken a funny step. But as the day went on, it bothered me more and more,…
It’s hard to believe that I head back to work soon as a college counselor and history teacher in high school. I enjoy my job, so while it’s great to have time off to recharge over the summer, it’s also fun to go back to school. It reminds me…
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