An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.I love snow. It doesn’t snow very often where I live, but I sure enjoy when it does. We got about 5 inches of snow last Thursday. I work as a college counselor at a private high school, so I benefited from the decision to close school on Friday. A…
Presidents Day is a nice three-day weekend to have in the middle of winter and a good time to recharge. As much as I hate to admit it, the chronic fatigue from Ehlers-Danlos syndrome (EDS) wears me down. The breaks I get working…
We’ve had a very strange “winter” so far here in the mid-Atlantic. I used quotation marks because we’ve barely had a winter. We’ve only had a few days of significant cold. Otherwise, it’s been bizarrely warm — and wet. My region has had so much rain recently that I’m…
I try hard not to be negative or to complain too much. Overall, my Ehlers-Danlos syndrome (EDS) is not as bad as it could be, and I’ve found ways to manage most of my symptoms. I usually can do what I enjoy with a bit of creativity. Still, I…
As I wrote in last week’s column, I’m dealing with a pain flare. The pain, while better, is still not where it should be. The sensation is difficult to explain. The best way to describe it is numb — I can feel it, but the pain is beneath the…
For the past week or so, I’ve been dealing with a pain flare. As sometimes happens with me, I don’t really know what started it. I have old injuries that are easy to aggravate, and they become the points from which my pain tends to radiate.
One of the great things about working at a school is the time I get off. As someone with Ehlers-Danlos syndrome (EDS), chronic fatigue is my nemesis. I’m always tired. I usually aim to get eight or nine hours of sleep a night, but I still wake up tired.
Well, it’s officially 2020! It feels odd to say that. Then again, I’m pretty sure I said the same thing back in 2000 and 2010, so I digress. To wrap up 2019, I tried a new activity that I found both beneficial and enjoyable — yoga. My extended family traditionally…
I love the holiday season. Time spent with family, brisk winter air, time off from work (a bonus to working for a school), and giving gifts that make people smile — it’s hard to top that! I also try my best to make sure that my Ehlers-Danlos syndrome (EDS) affects…
As someone with Ehlers-Danlos syndrome (EDS), bruising is just a part of life. I rarely give my bruises more than a passing glance anymore. They’re just of a part of my natural complexion at this point. People who aren’t used to my bruising tend to be pretty shocked, and…
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