Columns

Pilates Is Another Key to Building Body Awareness

I wrote last week about how much horseback riding has helped me with body awareness. Another activity that has helped me significantly improve body awareness is Pilates. Pilates also has made me more conscientious while riding, which in turn has had a positive domino effect for me. When I…

Horseback Riding Has Boosted My Body Awareness

Recently, someone mentioned that I seem to have heightened body awareness. I’d never really thought about it, but I guess I do pay attention to how my body moves (or doesn’t), my range of motion, and how different activities affect my pain levels and mobility. I don’t think I…

Why Do My Arms Have Different Muscle Tone?

I rarely wear short-sleeve shirts, but it’s not because of the same reason I often wear pants instead of shorts. Rather, it’s because I sunburn easily. I practically live in sun shirts while working outdoors on the farm. I don’t know how I made it through summer before these…

Why Do I Mentally Frame My EDS the Way I Do?

I realized earlier that I don’t often think of myself as having EDS. It’s not that I don’t recognize or accept that I have it, but that I rarely ever use it to frame how I’m feeling. For example, I experience a lot of EDS symptoms in my…

Are Blisters Part of My EDS?

Wow, did summer sure decide to turn on its furnace overnight here in Virginia. A day ago, it was in the mid-70s and perfect, and today it was 92 F and humid. Let me tell you, I am not a heat or summer person despite having lived most of my…

Adjusting to a Temporary New Normal

Last week, I was able to see my massage therapist for the first time in over three months due to the pandemic. About 10 years ago, I learned that massage is an integral part of my pain management. I don’t think I’d gone more than three weeks or a…

Letting Go of People’s Nosy Comments

One thing that’s both particularly difficult as well as sometimes wonderful about Ehlers-Danlos syndrome (EDS) is that, for the most part, it’s invisible. Except for my bruising, if you look at me, there’s nothing that would stand out and make someone realize that I have a rare genetic disorder.