As I landed face first in the cold mud, I was at least glad that the ground was soft and not frozen. While I marveled at the lack of awareness that led to me tripping and crashing, I was also thinking I had hit my threshold for crappy moments. I’ve…
Columns
Some weeks just don’t go how you hope they will. This past week was like that for me, and I can really feel it. Ehlers-Danlos syndrome (EDS) unfortunately means I have a strong physical-emotional connection. Being stressed often makes me stiff and sore, which in turn makes me…
Sometimes, when my back pain flares up, I know exactly what caused it. Other times, I have no idea. Last week fell into the “no clue” category. I knew that my back was sore, but it wasn’t until my massage therapist, Kim, really began working on it that I…
I’m back! I had a fantastic time at my recent work conference and learned so much from the colleagues I met there. Last week, I wrote that I was worried about dining options, as I have food sensitivities from Ehlers-Danlos syndrome as well as alpha-gal syndrome, a…
I’m preparing for a work conference, and for such events my dietary restrictions are a new element I have to consider carefully. Between the general food sensitivities that come with my Ehlers-Danlos syndrome (EDS) and being diagnosed with alpha-gal syndrome, a tick-borne disease that makes me allergic…
It’s the season for dry skin. Between the cold weather and frequent hand-washing, I can’t seem to stay ahead of it. I have a variety of heavy-duty lotions, but sometimes my skin still gets too dry. The worst part about that is the itching. I know, you’re not supposed to…
Back during that crazy cold snap in December, I remembered how amazing heating pads can be. Where I live, houses aren’t built with subzero wind chills in mind. So let’s just say that it got rather nippy inside when the wind chill outdoors hit somewhere around -7 F. I learned…
I don’t sit still well. I’m not sure I would’ve survived elementary school if I hadn’t been in a Montessori-style school that allowed me to move around at will, do my math while lying on the floor, and explore new things. I can sit and focus without trouble when I…
I love dogs — I have two rescue dogs — but some days they sure give me a run for my money. I was recently watching a friend’s dogs while she was out of town. My friend lives on a farm, like I do, but her farm is bigger…
A few days ago, I stumbled upon a recent blog post titled “Come As You Are: The Autoimmune Equestrian” on the website Eventing Nation. Eventing, or the triathlon of horse sports, as it’s often called, has a range of levels, from Olympic all the way down to…
Recent Posts
- The long quest to learn the reasons for my strange symptoms and illnesses September 8, 2026
- Androgen hormones may affect hypermobile EDS symptoms in women August 28, 2026
- Guest Voice: Changing my treatment plan resolved years of EDS symptoms August 27, 2026
- My team of doctors is helping me lead a healthier life with EDS August 25, 2026
- Road to dual hEDS-autism diagnoses can be long but empowering August 21, 2026
- Short summer seasons teach me some lifelong lessons about living with hEDS August 18, 2026
- Avoiding the painful consequences of dental cleanings with hEDS August 11, 2026
- Chronic pain condition 10 times more likely for those with EDS, per study August 7, 2026
- Nearly half of EDS patients report moderate to severe pain at diagnosis July 31, 2026
- Pelvic muscle, nerve dysfunction may drive urinary symptoms in hEDS July 24, 2026