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Parenting a child with Ehlers-Danlos syndrome (EDS) can be challenging. This information about pediatric EDS may be useful in helping you meet those challenges as you endeavor to provide the best possible care for your child. What is EDS? EDS refers to a group of disorders that affect the…
There are many other conditions that may exist simultaneously with Ehlers-Danlos syndrome (EDS), even though researchers don’t fully understand their association with EDS. Here is some information about what other conditions can be present in EDS patients. What is EDS? EDS refers to a group of disorders that…
There currently is no cure for Ehlers-Danlos syndrome (EDS), and not many options for treating the genetic disease’s symptoms, which can range from loose joints to fragile skin to cardiac problems. None of the treatments available address the disease’s underlying cause. Participating in clinical…
Patients with Ehlers-Danlos syndrome (EDS) may need to undergo medical procedures that require anesthesia. Here is information about the different forms of anesthesia, how the condition may complicate their use, and precautions physicians should take. What is anesthesia? Anesthesia involves the use of medications to prevent or reduce…
If you have Ehlers-Danlos syndrome (EDS), you may want to consider carrying a medical alert card with you. These alert cards can help reduce the risk of further injury in an emergency. What is EDS? EDS is a group of genetic disorders that result in defects in the structure…
A common feature of Ehlers-Danlos syndrome (EDS) — a group of rare inherited conditions that affect connective tissue — is joint hypermobility. Connective tissue is an integral part of the skin, tendons, ligaments, blood vessels, and many organs and tissues in the body. Changes in these tissues lead to the…
In the past, there have been several different terms used to describe patients with joint hypermobility (JH) and Ehlers-Danlos syndrome (EDS). A new framework for classification was proposed by the Ehlers-Danlos Society in 2017 for patients with joint hypermobility syndrome (JHS) and hypermobile EDS (hEDS). This classification system…
Ehlers-Danlos syndrome (EDS) is a group of connective tissue disorders found in about 1 in 5,000 people worldwide across its 13 known forms, and an estimated 1 in every 20,000 to 40,000 among those with classical EDS. Raising awareness of this rare genetic disease could help more people attain…
Living alone with a chronic illness such as Ehlers-Danlos syndrome (EDS) can be challenging. However, there are steps you can take to help achieve independent living. Learn to manage your symptoms The first step is to know as much as possible about your condition. EDS is a rare disease…
Living with Ehlers-Danlos syndrome (EDS) can be challenging. But steps you can take in everyday life will help you with controlling the disease’s many symptoms, and preventing injuries. Here are some of these safety tips. Opt for safe sports and activities Good options for sports and other activities include…
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