Health Insights

What to Expect From Physiotherapy When You Have EDS

Physiotherapy can help people with Ehlers-Danlos syndrome (EDS), which is a group of disorders that affect connective tissues and cause symptoms that range from mildly loose joints to life-threatening complications. If you’re about to start a physical therapy program, here’s what you can expect. Before your…

Tips for People Newly Diagnosed With EDS

After what was likely a long journey, upon diagnosis you learned that you are among the estimated 1 in 5,000 people who have Ehlers-Danlos syndrome (EDS). Although you may be relieved to finally know the cause of your loose joints and other symptoms, you my still need guidance. Here…

EDS and Sleep Hygiene

Sleep disorders are common among people with Ehlers-Danlos syndrome (EDS). Because a good night’s sleep is essential to your health, both physically and mentally, and to a good quality of life, it may be beneficial for you to practice what’s called sleep hygiene. What is sleep hygiene? Sleep hygiene…

How to Manage Brain Fog When You Have EDS

While “brain fog” is not one of the most common symptoms of Ehlers-Danlos syndrome (EDS), many patients report experiencing this form of cognitive dysfunction, which can affect their ability to focus, learn, retain information, and maintain employment. What is EDS? EDS refers to a group of genetic…

How EDS Affects Mental Health

A combination of symptoms and stress from chronic pain in patients with Ehlers-Danlos syndrome (EDS) can contribute to the risk of mental health problems. EDS refers to a group of disorders that affect the connective tissue, making it weak and easy to damage. Connective tissue gives structure…

Sleep Disorders in Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of disorders that affect the connective tissue that gives structure to joints, tissues, and organs. The disease is characterized by weakness in the connective tissue, though the symptoms and their severity vary between the different types of EDS. It’s common…

Fatigue and Ways to Deal With It When You Have EDS

Fatigue is common to people with a chronic disease, and a likely constant companion to those with Ehlers-Danlos syndrome.  Here are some tips to help you manage fatigue, and possibly get relief. Fatigue is difficult to quantify Fatigue is called chronic if it’s been present for more than six…

Mindfulness for People with EDS

Because Ehlers-Danlos syndrome (EDS) affects many different systems in the body simultaneously, you may experience many different symptoms. Coping with them can be a challenge. A practice called mindfulness may help. What is mindfulness? Mindfulness means maintaining a moment-by-moment awareness of your thoughts, feelings, and body sensations, and…