Unbreakable - a Column by Kimberly Zapert

Kimberly is a native Texan and long-time Coloradan now living in the hills of north-central Pennsylvania. The adaptation required to navigate life with Ehlers-Danlos syndrome, POTS, and narcolepsy continually shapes Kim’s skillsets and broadens her interests. She strives to maintain an active lifestyle for her family and enjoys her small-town community. The drive to help others faced with similar challenges has led Kim to a position with BioNews’s Ehlers-Danlos News, where she offers encouragement and practical advice to readers by sharing her own struggles, victories, and insights through her column, “Unbreakable.”

Your Health Is Not Defined by a Diagnosis

After recently honoring Rare Disease Day on Feb. 28, I’m contemplating the obvious: A person is not defined by a diagnosis. This usually means they don’t allow a condition to limit their enjoyment of life or their accomplishments. But that’s not what I’m talking about — not directly, anyway. I’m…

Here’s How I Am Coping with the Corona Crisis

Too often while pursuing answers to health questions, people with an Ehlers-Danlos syndrome are told that their physical symptoms must be caused by stress, or perhaps they’re psychosomatic, because no obvious explanations are available. I related my own frustration about this to my physical therapist several years ago while he…

Distinguishing Between My Identity and My Roles in Life

Change happens. I have had many roles in my life, including being a daughter, wife, and mother. I’ve also been a student, artisan, neighbor, patient, and advocate. You probably have had similar experiences. Roles have come, and roles have gone. It’s part of the natural waxing and waning of life.

Here’s How I Made the Holiday Season More Enjoyable

Usually, negative feelings are rooted in unmet expectations. Examining those expectations and deciding if they are reasonable can be particularly helpful when life changes. I recently adjusted my expectations for the holiday season, and now that we have made it through and are settling into the new year, I can…

Acting Up, Ehlers-Danlos Style

A few months ago, our community’s theater company held auditions for two productions. At the suggestion of someone whose opinions I trust, I contacted the theater company and arranged to audition for one. The river that flows from Egypt straight to my house In my excitement to try something new…