COVID-19 and Ehlers-Danlos Syndrome

Information About COVID-19

As the COVID-19 pandemic continues, Ehlers-Danlos News strives to cover various aspects of the virus and its impact on the patient community. Click the “Learn More” button for more information on COVID-19, including how it affects Ehlers-Danlos syndrome patients. Scroll down to see some of our recent news stories and columns related to the pandemic.

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COVID-19 Perspectives

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    May 25, 2021 Columns by Karen Del Vecchio

    I’m Ready to Recharge After an Unusual School Year
  2. positivity, unknown sources, massage, fatigue, compensatory pain, Invisalign, sunlight, small steps, muscle tightness, knee pillow, massage, injury, bruises, positivity, occupational therapy, holiday season, surgery, thankful, anxiety, eds effects, massage, 2020, finger, fracture, awareness, sign, surge capacity, tension
    March 23, 2021 Columns by Karen Del Vecchio

    Traditional Orthodontic Retainers Are Insufficient, Thanks to My EDS
  3. layers, mentally frame, new normal, other people's perceptions
    March 19, 2020 Columns by Karen Del Vecchio

    Navigating the Sudden Lifestyle Changes with COVID-19
  4. positivity, unknown sources, massage, fatigue, compensatory pain, Invisalign, sunlight, small steps, muscle tightness, knee pillow, massage, injury, bruises, positivity, occupational therapy, holiday season, surgery, thankful, anxiety, eds effects, massage, 2020, finger, fracture, awareness, sign, surge capacity, tension
    March 16, 2021 Columns by Karen Del Vecchio

    Sunlight Helps to Ease My Stress and Anxiety
  5. positivity, unknown sources, massage, fatigue, compensatory pain, Invisalign, sunlight, small steps, muscle tightness, knee pillow, massage, injury, bruises, positivity, occupational therapy, holiday season, surgery, thankful, anxiety, eds effects, massage, 2020, finger, fracture, awareness, sign, surge capacity, tension
    March 9, 2021 Columns by Karen Del Vecchio

    To Reduce Anxiety, I Remind Myself That Pain and Stress Are Related
  6. positivity, unknown sources, massage, fatigue, compensatory pain, Invisalign, sunlight, small steps, muscle tightness, knee pillow, massage, injury, bruises, positivity, occupational therapy, holiday season, surgery, thankful, anxiety, eds effects, massage, 2020, finger, fracture, awareness, sign, surge capacity, tension
    January 26, 2021 Columns by Karen Del Vecchio

    Explaining My Bruises to Concerned Healthcare Professionals
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COVID-19 News

  1. awareness month
    May 3, 2021 News by Mary Chapman

    Virtual Events on Tap Globally for May, EDS and HSD Awareness Month
  2. COVID vaccines
    April 26, 2021 News by Patricia Inácio, PhD

    Quick Approval for COVID Vaccines a Concern, Rare Disease Patients Say
  3. April 16, 2021 News by Patricia Inácio, PhD

    EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
  4. February 10, 2021 News by Mary Chapman

    Pandemic Won’t Stop Rare Disease Day on Feb. 28
  5. January 29, 2021 News by Forest Ray PhD

    COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say
  6. November 26, 2020 News by Marta Figueiredo, PhD

    Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
  7. May 29, 2020 News by Larry Luxner

    COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
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