News

Temporomandibular disorders highly prevalent in cEDS, hEDS

Temporomandibular disorders, or conditions that affect the jaw joint and muscles, are highly prevalent among people with classical Ehlers-Danlos syndrome (cEDS), hypermobile EDS (hEDS) and hypermobility spectrum disorders in Sweden, a study reports. While conservative treatments resulted in positive outcomes, more than half the patients who were asked said there…

Muscle weakness while walking may contribute to unstable joints

People with hypermobile Ehlers-Danlos syndrome (hEDS) produced less force when extending their hips during walking and had weaker muscles associated with hip extension compared to healthy people, according to a recent analysis. Researchers believe this muscle weakness may contribute to joint instability and related joint damage that tends to…

Pain interferes with walking in children with hEDS/HSD: Study

Children with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) who are in pain or anticipating pain show certain walking patterns, leading researchers to believe walking assessments may help to better understand clinical characteristics of the conditions and to develop coping strategies. Compared with typically developing children, those…

Asthma medication eases pain, boosts life quality for hEDS patient

A 33-year-old woman with hypermobile Ehlers-Danlos syndrome (hEDS) experienced less systemic (body-wide) pain and inflammation, as well as greater overall functioning after starting treatment with omalizumab, a medication for asthma and allergies, according to a recent report. Omalizumab is an injectable therapy that blocks the interaction of immunoglobulin…

Anti-inflammatory telitacicept effective for woman with aEDS

Telitacicept, an anti-inflammatory medication, successfully treated a woman with arthrochalasia Ehlers-Danlos syndrome (aEDS), a case study reports. Researchers speculated the disease-causing mutation that led to defective collagen protein may have triggered an immune response that worsened her symptoms, which were then reduced upon telitacicept treatment. The case study, “…

Long COVID symptoms lead to hEDS diagnosis in small study

Clinicians should test for hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) if their patients continue to show persistent symptoms after infection with SARS-CoV-2, the virus that causes COVID-19, according to a small report. “We conclude that hEDS/HSD should be considered … especially in patients of female gender…

Psychological interventions may help with EDS pain, life quality

Psychological interventions to address pain and quality of life for people with Ehlers-Danlos syndrome (EDS) and related conditions are most effective when delivered alongside physiotherapy in an outpatient or community setting, according to a review study. “The results confirmed the primary aim, in that psychological interventions are successful at…