News

Pelvic pain and sexual health problems are common among women seen for genito-pelvic pain who had signs of joint hypermobility, including those with hypermobile Ehlers–Danlos syndrome (EDS), a study found. Women with hypermobile EDS (hEDS), hypermobility spectrum disorder (HSD), or other hypermobility features had…

Medications to treat psychiatric disorders did not affect heart rhythms in people with hypermobile Ehlers-Danlos syndrome (hEDS) in a retrospective study. Still, “routine cardiovascular monitoring and interdisciplinary care are recommended for hypermobile patients on psychoactive medications,” the researchers wrote. hEDS patients had a higher psychiatric burden and greater psychoactive…

Long-term medical cannabis use may help ease pain related to hypermobility for some people with Ehlers-Danlos syndrome (EDS), according to a U.K.-based registry study. The researchers assessed treatment outcomes among people with extremely flexible joints, including individuals with hypermobile EDS (hEDS), who used medical cannabis for at least…

Women in a small study of hypermobile Ehlers-Danlos syndrome (hEDS) reported chronic pain and high rates of kinesiophobia, or fear of movement or activity, both of which were associated with worse mental health scores and lower physical function. Despite a history of adult…

Women with self-reported Ehlers-Danlos syndrome (EDS), many with the hypermobile form, commonly reported digestive symptoms and altered eating behaviors, with more than one-third considered at risk of having an eating disorder, a study found. Many participants reported food allergies, painful or fearful eating, and digestive symptoms, while some also…

Blocking certain steroid hormone signaling helped reduce the risk of life-threatening blood vessel rupture in a mouse model of vascular Ehlers-Danlos syndrome (VEDS), according to a new study. Unexpected tears in the aorta, the largest blood vessel in the body, are a major concern in VEDS. Using a mouse…

Celiprolol may help lower the risk of fatal vascular complications while also providing psychological reassurance for people with vascular Ehlers-Danlos syndrome (vEDS), according to the first study of the treatment conducted outside Europe. In the Japanese study, nearly half of the patients experienced no vascular or nonvascular complications…

Difficulty swallowing, or dysphagia, can be a significant problem in hypermobile Ehlers-Danlos syndrome (hEDS), and may occur alongside gastrointestinal issues that can require supplemental or alternative nutrition or hydration, according to a small U.S. study. Dysphagia appeared to be related to underlying hEDS symptoms and related conditions, including gastrointestinal…

Dismissive attitudes from healthcare providers can lead people with Ehlers-Danlos syndrome (EDS) to doubt their own experiences of chronic pain, a study found. Researchers found that EDS patients facing skepticism from care providers will often end up minimizing their own pain — and as a result, their pain doesn’t…

May is EDS Awareness Month, an annual event in which advocates around the world work to increase awareness of Ehlers-Danlos syndrome (EDS) and other hypermobility spectrum disorders, and fundraise on behalf of those living with these genetic conditions. For this year’s awareness month, the Ehlers-Danlos Society — a global…