News

Young adults with Ehlers-Danlos syndrome (EDS) who underwent surgery in the U.S. for an abnormally formed or unstable hip experienced clinically meaningful improvements in function and less pain, as well as benefits in mental health, a new study found. Further, these patients — mostly in their late 20s —…

Breathing problems have a significant effect on daily activities and quality of life for people with hypermobile Ehlers-Danlos syndrome (hEDS) and generalized hypermobility spectrum disorder (G-HSD), a study showed. People with hEDS or G-HSD who had more severe dyspnea (shortness of breath) were more likely to have poorer physical…

Gynecologists, urologists, and pelvic floor physical therapists often diagnose and treat vulvar pain in women with hypermobile Ehlers-Danlos syndrome (hEDS) without formal training in this type of pain care, relying instead on experience gained directly from their patients, an interview study found. The study described how these providers, who…

Surgery to relieve pressure on nerves or blood vessels near the shoulder may ease symptoms such as pain and tingling and improve daily function in people with hypermobile Ehlers–Danlos syndrome (hEDS) who also have thoracic outlet syndrome (TOS), a small U.S. study suggests. However, for most patients, relief…

Gastrointestinal symptom-related anxiety and fear of negative consequences from eating may contribute to positive eating disorder screens that overestimate risk in adults with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD). That’s according to a study in the U.K. that evaluated patients’ responses to the Sick, Control, One…

Women with hypermobile Ehlers–Danlos syndrome may process androgen hormones — steroid hormones such as testosterone and related male sex hormones — differently, which could be linked to some of their symptoms, according to a study. More research is needed to understand why and whether it affects treatment, researchers wrote…

People with hypermobile Ehlers-Danlos syndrome (hEDS) who also have autism commonly experience complicated journeys to diagnosis of both conditions — but once both conditions are accurately diagnosed, patients often report feeling empowered and better able to manage their own care. “Diagnostic journeys were lengthy, gruelling and expensive, particularly for…

People with Ehlers-Danlos syndrome (EDS) are more likely than others to also be diagnosed with a rare and often severe chronic pain condition that usually affects the arms and legs, according to a new U.S. study. In a review of insurance data, researchers in New York found that complex…

Nearly half of people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) experience moderate to severe pain at the time of diagnosis, a study in Italy shows. The study identified older age, hypermobile EDS (hEDS), and headaches as factors linked to greater pain severity. “An early pain…

Urinary symptoms, chiefly needing to pee more than usual, in people with hypermobile Ehlers-Danlos syndrome (hEDS) may not be caused by bladder problems, but instead by poor coordination of the pelvic floor muscles and the nerves involved in urination, according to a new study. Tests in 27 patients showed…