Lower Quality of Life Found in Young Women With Hypermobility

Orthostatic intolerance — a condition characterized by symptoms like dizziness, elevated heart rate, or blurred vision upon moving to an upright position — was common, and had a significant impact, among young women and adolescent girls with hypermobile Ehlers-Danlos syndrome (hEDS) and generalized hypermobility spectrum disorder (G-HSD), according…

Patient Draws on Her Own Experience to Help Others Through Podcast

Kerry Gabrielson, a 34-year-old with Ehlers-Danlos syndrome (EDS), is devoting herself to raising awareness about hypermobile diseases and helping people with these disorders learn how to manage their symptoms through her podcast “Hypermobility Happy Hour.” In the 34 episodes aired to date, Gabrielson has interviewed experts on topics…

Raising Awareness of Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of connective tissue disorders found in about 1 in 5,000 people worldwide across its 13 known forms, and an estimated 1 in every 20,000 to 40,000 among those with classical EDS. Raising awareness of this rare genetic disease could help more people attain…

Distinguishing Between My Identity and My Roles in Life

Change happens. I have had many roles in my life, including being a daughter, wife, and mother. I’ve also been a student, artisan, neighbor, patient, and advocate. You probably have had similar experiences. Roles have come, and roles have gone. It’s part of the natural waxing and waning of life.