Updates

January 20, 2021January 20, 2021
EDS and Your Skin

Skin issues are common to people with Ehlers-Danlos syndrome (EDS). Here is more information about how EDS can affect your skin, as well as some ... Read more
January 19, 2021January 19, 2021
Art Contest Salutes Creativity of Rare Disease Communities

Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by the EveryLife Foundation for Rare ... Read more
January 19, 2021January 15, 2021
Banged Up and Bruised After a Recent Fall Down the Steps

I don’t think I’m alone in hoping that 2021 would be a better year than last, but it’s certainly off to an interesting start. ... Read more
January 15, 2021January 15, 2021
UK Rare Diseases Framework Opens to Improve Diagnosis, Access to Care

U.K. Rare Diseases Framework, a government-led approach to raising national awareness of rare disorders, accelerating diagnoses, and improving patient care and treatment, is now ... Read more
January 13, 2021January 13, 2021
Your EDS Treatment Team

If you have Ehlers-Danlos syndrome (EDS), you may need to see a multidisciplinary treatment team, in addition to your primary care physician, to treat the ... Read more

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September 12, 2018September 12, 2018

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports

News

Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more

Updates

EDS and Your Skin

Art Contest Salutes Creativity of Rare Disease Communities

Banged Up and Bruised After a Recent Fall Down the Steps

UK Rare Diseases Framework Opens to Improve Diagnosis, Access to Care

Your EDS Treatment Team

EDS Has Taught Me to Be More Positive

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

EDS Patient Registries and Their Importance

Learning the Difference Between Occupational and Physical Therapy

Sharing Some Light This Holiday Season

Ehlers-Danlos Society Offers Scholarships for Summer Conference, Events

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EDS in Children

Slow and Steady Wins the Recovery Race

Ehlers-Danlos Society Plans Online Events for 2021

Other Conditions Common in EDS Patients

Managing Winter Weather and EDS Symptoms

Ehlers-Danlos Society Taking Applications for 2nd Round of Research Grant Programs

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Clinical Trials for EDS

4 Ways to Manage Anxiety and Lower Stress

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

EDS and Anesthesia Risks

I’m Thankful for Community This Thanksgiving

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Mitigating the Effects of EDS on My Injury

EDS Patients Have Increased Blood Artery Stiffness, Linked to Cardiovascular Disease Risk

Alert Cards for Patients With EDS

Finding Our Common Ground

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

How Do Doctors Assess Joint Hypermobility in EDS?

Staying Positive When Frustration Sets In

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Hypermobile EDS vs. Hypermobility Spectrum Disorders

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports