Updates

October 21, 2020October 21, 2020
Raising Awareness of Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of connective tissue disorders found in about 1 in 5,000 people worldwide across its 13 known forms, and an ... Read more
October 20, 2020October 16, 2020
Another Round in the Finger Saga

A few weeks ago I was pretty happy to hear that because my finger injury was a break in the bone, my Eherls-Danlos syndrome ... Read more
October 16, 2020October 16, 2020
Alternative Therapies Common to Manage Pain in EDS and HSD, Survey Says

More than half of patients with Ehlers–Danlos syndrome (EDS) and hypermobility spectrum disorder (HSD) use complementary alternative therapies to manage pain, according to the results of ... Read more
October 14, 2020October 14, 2020
Independent Living for People With EDS

Living alone with a chronic illness such as Ehlers-Danlos syndrome (EDS) can be challenging. However, there are steps you can take to help achieve ... Read more
October 13, 2020October 9, 2020
Some Days Are Just So 2020

I saw a cartoon the other day that showed a husband and wife sitting on a sofa. The wife asked her husband how his ... Read more

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September 12, 2018September 12, 2018

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports

News

Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more

Updates

Raising Awareness of Ehlers-Danlos Syndrome

Another Round in the Finger Saga

Alternative Therapies Common to Manage Pain in EDS and HSD, Survey Says

Independent Living for People With EDS

Some Days Are Just So 2020

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Safety Tips for People With EDS

Progress With My Horse Becomes a Setback With My Hand

Complex Concerns of EDS Focus of Virtual ECHO Summit Opening Today

Ehlers-Danlos Syndrome and Your Sex Life

Spreading EDS Awareness Is Critical

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Diagnostic Criteria for Classical EDS May Need Update, Study Suggests

The Spoon Theory for EDS Patients

Spotting a Sign of EDS in My Younger, Undiagnosed Self

Women With EDS Have Higher Risk of Pregnancy, Delivery Complications, Study Finds

Colon Hydrotherapy and EDS

Finding Relief From GI Discomfort With Probitiocs

Hydrotherapy for EDS

Are You a Surge Capacity Warrior?

Same But Different Photo Contest Celebrates People With Rare Diseases

A New Assignment Has Me Worried About Stress

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Things to Consider Before Scoliosis Surgery for EDS

Changing Schedules Seasonally Means More Fatigue

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Bladder Issues in EDS

After a Lengthy Hiatus, I Finally Had a Massage and Bodywork

Rare Form of EDS Increases Risk of Tissue Fragility in GI Tract, Study Says

New Streaming Channel Showcases Rare Disease Films

How to Deal With Bowel Issues in EDS

Reflecting on an Odd Summer As Times Change Again

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Eye Problems in EDS

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports

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