Horses, Hounds, and Hyperflexibility: Just Another Day on the Farm
When you live on a farm, you are witness to many bizarre events. Animals are amazing and wonderful, but they have their moments and ... Read more
Updates
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Ehlers-Danlos Society Marks Awareness Month in May with Variety of Awareness, Fundraising Initiatives
The Ehlers-Danlos Society is offering several ways to get involved, spread awareness, and raise funds during Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder Awareness Month in May. ... Read more -
My Children’s Lives Have Meaning and Purpose
A distressing observation A couple of nights ago, I watched my youngest child as she settled in to go to sleep. She wrestled with ... Read more -
I’ve Had to Get Creative to Overcome Muscle Tightness
I can manage to do most of what I want to, despite my Ehlers-Danlos syndrome. Sometimes, though, I have to get creative to pull ... Read more -
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose ... Read more
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A Squirrel Sneezes — and My Pain Flares Up
Overall, things have been going great in my life. My new horse Cherry is ... -
Expressing Negative Thoughts and Feelings Helps Me Stay Positive
I write quite a bit about looking for silver linings, embracing joy where I ... -
A Bit of Horse Sense: Sometimes It’s the Little Things
Back in November when I fell off my horse Spotty, I badly sprained my ... -
PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights
Cumbersome security procedures, rising airfares, and shrinking legroom have made commercial air travel difficult ... -
I Have Greater Empathy for Others, Thanks to My EDS
One common issue that many people with an Ehlers-Danlos syndrome (EDS) deal with is that ... -
Celiprolol, Not Losartan, Improves Aortic Strength in Mouse Model of vEDS
Celiprolol, a therapy that improves heart rate and reduces blood pressure, can strengthen the ...
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Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports
News
Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more