Updates

September 25, 2020September 25, 2020
Diagnostic Criteria for Classical EDS May Need Update, Study Suggests

People with classical Ehlers-Danlos syndrome (EDS) appear to have less multi-organ involvement than those with other types, suggesting that the diagnostic criteria for this ... Read more
September 23, 2020
The Spoon Theory for EDS Patients

A chronic disease such as Ehlers-Danlos syndrome (EDS) can make activities of daily life more challenging. Friends and family members may not always understand ... Read more
September 22, 2020September 17, 2020
Spotting a Sign of EDS in My Younger, Undiagnosed Self

Last weekend, I had a chance to go to my parents’ house for a while. They live only about 45 minutes away, but with ... Read more
September 18, 2020September 18, 2020
Women With EDS Have Higher Risk of Pregnancy, Delivery Complications, Study Finds

Pregnant women with Ehlers-Danlos syndrome (EDS) have a higher risk of experiencing a number of pregnancy and delivery complications, including premature births, placenta previa, ... Read more
September 16, 2020September 16, 2020
Colon Hydrotherapy and EDS

People with Ehlers-Danlos syndrome (EDS) can often experience gastrointestinal issues and bowel complications. Colon hydrotherapy is sometimes touted as a treatment for digestive system ... Read more

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September 12, 2018September 12, 2018

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports

News

Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more

Updates

Diagnostic Criteria for Classical EDS May Need Update, Study Suggests

The Spoon Theory for EDS Patients

Spotting a Sign of EDS in My Younger, Undiagnosed Self

Women With EDS Have Higher Risk of Pregnancy, Delivery Complications, Study Finds

Colon Hydrotherapy and EDS

Finding Relief From GI Discomfort With Probitiocs

Hydrotherapy for EDS

Are You a Surge Capacity Warrior?

Same But Different Photo Contest Celebrates People With Rare Diseases

A New Assignment Has Me Worried About Stress

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

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Things to Consider Before Scoliosis Surgery for EDS

Changing Schedules Seasonally Means More Fatigue

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Bladder Issues in EDS

After a Lengthy Hiatus, I Finally Had a Massage and Bodywork

Rare Form of EDS Increases Risk of Tissue Fragility in GI Tract, Study Says

New Streaming Channel Showcases Rare Disease Films

How to Deal With Bowel Issues in EDS

Reflecting on an Odd Summer As Times Change Again

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Eye Problems in EDS

The History of Ehlers-Danlos Syndrome Research Is Fascinating

New Screening System Allows HEDGE Study Enrollment Without In-person Visits

Peeling Back the Layers of Physical Issues

Corrective Laser Eye Surgery Reported in Rare Patient Case Study

Pilates Is Another Key to Building Body Awareness

How EDS Affects the Teeth and Gums

Rare Vascular Case of EDS Linked to Newly Identified Mutation

How Does EDS Affect Heart Health and Function?

Horseback Riding Has Boosted My Body Awareness

Why Do My Arms Have Different Muscle Tone?

Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports

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Diagnostic Criteria for Classical EDS May Need Update, Study Suggests

The Spoon Theory for EDS Patients

Spotting a Sign of EDS in My Younger, Undiagnosed Self

Women With EDS Have Higher Risk of Pregnancy, Delivery Complications, Study Finds

Colon Hydrotherapy and EDS

Finding Relief From GI Discomfort With Probitiocs

Hydrotherapy for EDS

Are You a Surge Capacity Warrior?

Same But Different Photo Contest Celebrates People With Rare Diseases

A New Assignment Has Me Worried About Stress

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Subscribe to our mailing list

Things to Consider Before Scoliosis Surgery for EDS

Changing Schedules Seasonally Means More Fatigue

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Bladder Issues in EDS

After a Lengthy Hiatus, I Finally Had a Massage and Bodywork

Rare Form of EDS Increases Risk of Tissue Fragility in GI Tract, Study Says

New Streaming Channel Showcases Rare Disease Films

How to Deal With Bowel Issues in EDS

Reflecting on an Odd Summer As Times Change Again

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Eye Problems in EDS

The History of Ehlers-Danlos Syndrome Research Is Fascinating

New Screening System Allows HEDGE Study Enrollment Without In-person Visits

Peeling Back the Layers of Physical Issues

Corrective Laser Eye Surgery Reported in Rare Patient Case Study

Pilates Is Another Key to Building Body Awareness

How EDS Affects the Teeth and Gums

Rare Vascular Case of EDS Linked to Newly Identified Mutation

How Does EDS Affect Heart Health and Function?

Horseback Riding Has Boosted My Body Awareness

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Why Do My Arms Have Different Muscle Tone?

Pin It on Pinterest