I don’t have a degree in anatomy, but sometimes I wish I understood the inner workings of the muscles, fascia, joints, and ligaments better. Living with hypermobile Ehlers-Danlos syndrome (hEDS) has forced me to learn far more about my body than I ever expected to, usually the hard way.
Discussion
Gynecologists, urologists, and pelvic floor physical therapists often diagnose and treat vulvar pain in women with hypermobile Ehlers-Danlos syndrome (hEDS) without formal training in this type of pain care, relying instead on experience gained directly from their patients, an interview study found. The study described how these providers, who…
Discussion
You’re going about your day when, all of a sudden, it feels like your body has completely forgotten how to swallow properly, and you start choking. It’s been happening to me a lot lately! I might be doing housework or talking to someone, and I’ll inhale just as my throat…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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