The Ehlers-Danlos Society is teaming up with Harvard Medical School and Brigham and Women’s Hospital in an effort to improve care for people with Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD). The ultimate goal is to develop new models that support earlier recognition in primary care, more…
Discussion
Note: This column describes the author’s experiences with fascial counterstrain (FCS). Not everyone will have the same response to treatment. I’ve been trying a new type of physical therapy called fascial counterstrain (FCS). Before I started it, I’d been struggling with the after-effects of a fall from my horse that…
Heavy menstrual bleeding affects nearly 9 in 10 women with Ehlers-Danlos syndrome (EDS), with half experiencing severe bleeding, a new study reports. Despite this high burden, many women experience extended delays in EDS diagnosis — often after emergency visits, transfusions, and major surgeries to treat heavy menstrual bleeding.
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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