Most adults with hypermobile Ehlers-Danlos syndrome (hEDS) report notable changes in breathing patterns, called functional respiratory complaints, according to a population survey. The survey included the Nijmegen questionnaire (NQ), which assessed these breathing-related symptoms, including chest pain, dizzy spells, shortness of breath, faster or deeper breathing, and chest…
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“When you’re not used to hurting all the time anymore, it really sucks when you do, doesn’t it?” Those are the paraphrased words of my massage therapist last week, and while they perhaps weren’t the most elegantly phrased, they sure rang true to me. After having a bizarre Ehlers-Danlos…
I’ve been managing some unusual pain issues over the past few weeks. It’s rare that I don’t feel better after a massage, but two weeks ago, that happened. Even after a few days, my pain wasn’t improving. It felt like I hadn’t even had a massage. I couldn’t…
Columnist Karen Del Vecchio is no stranger to getting massages for her Ehlers-Danlos pain, but a recent surge of energy was unusual.
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