Walking through the door for my first Pilates session in nearly six years, I felt a wave of nerves. The last six months had been a difficult recovery from a severely broken rib and a sprained diaphragm, injuries further complicated by Ehlers-Danlos syndrome (EDS). I was anxious that engaging…
People with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) may experience greater physical and mental health challenges when they also have autism, a survey study in the U.K. suggests. Drawing on responses from more than 1,700 participants, researchers found that autistic participants more often reported pain, sleep…
Males with vascular Ehlers-Danlos syndrome (vEDS) face a higher risk of certain blood vessel complications and poorer survival than female patients, according to a large study. By analyzing data from more than 550 people with vEDS, researchers found that males were more likely to develop aortic and arterial disease…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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