As I sit here for the fourth hour at the infusion center, I feel a wave of gratitude wash over me. I’m thankful to have hydration and other infusion options to help me power through difficult days. It has taken me years to accept that I sometimes need supportive care…
May is EDS Awareness Month, an annual event in which advocates around the world work to increase awareness of Ehlers-Danlos syndrome (EDS) and other hypermobility spectrum disorders, and fundraise on behalf of those living with these genetic conditions. For this year’s awareness month, the Ehlers-Danlos Society — a global…
Discussion
As I drove along the highway, I could feel my muscles getting tighter. Despite my best efforts to avoid setting off a pain flare, I knew I probably wouldn’t be able to stop this one. While I’ve developed a number of strategies over the years to manage my Ehlers-Danlos…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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