Pants vs. Shorts: A Battle of the Bruising
Pants. For many years, women rallied for the ability to wear pants instead of skirts and dresses. As an extremely active individual, most of ... Read more
Updates
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Ehlers-Danlos Society Launches Project ECHO Initiative Aimed at Patient Care Worldwide
The Ehlers-Danlos Society has launched an initiative to support healthcare professionals worldwide to care for patients with Ehlers-Danlos syndromes (EDS) and other hypermobility spectrum ... Read more -
Balancing Sleep and a Busy World
Perhaps one of the toughest things about Ehlers-Danlos syndrome (EDS) is the chronic fatigue. It’s invisible, so those around you often don’t understand, and ... Read more -
Use of Antihypertensives Doesn’t Decrease vEDS Complications, Study Suggests
The use of antihypertensive therapies — medications that lower high blood pressure — is not linked to a decrease in the frequency of clinical ... Read more -
Pilates Has Brought Me Many Unexpected Benefits
As I’ve shared before, Pilates has been an enormous help in managing my Ehlers-Danlos syndrome (EDS). Although I was introduced to it as recently as ... Read more
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Ehlers-Danlos Society Awards $275K in Grants to Support Research on EDS and HSD
The Ehlers-Danlos Society will award a total $275,000 in research grants to four projects ... -
Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims ... -
Horses, Hounds, and Hyperflexibility: Just Another Day on the Farm
When you live on a farm, you are witness to many bizarre events. Animals ... -
Ehlers-Danlos Society Marks Awareness Month in May with Variety of Awareness, Fundraising Initiatives
The Ehlers-Danlos Society is offering several ways to get involved, spread awareness, and raise ... -
My Children’s Lives Have Meaning and Purpose
A distressing observation A couple of nights ago, I watched my youngest child as ... -
I’ve Had to Get Creative to Overcome Muscle Tightness
I can manage to do most of what I want to, despite my Ehlers-Danlos ...
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Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports
News
Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more