Tips for Lowering Your Blood Pressure When You Have EDS
Blood pressure is determined by the amount of blood your heart pumps and the resistance to blood flow in your blood vessels. High blood ... Read more
Updates
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New Partners Celebrate October Success
It turns out the crazy busy week paid off. I spent last weekend at a horse show in North Carolina, and Cherry and I had ... Read more -
Ehlers-Danlos Society Helps Launch Center at Indiana University Health to Advance Research, Patient Care
The Ehlers-Danlos Society has helped to launch a center at Indiana University Health (IU Health) to advance research, education, and patient care in some ... Read more -
Physiotherapy for EDS: What to Expect
Physiotherapy is one of the treatments that may help patients with Ehlers-Danlos syndrome (EDS), a rare genetic disease that affects the connective tissues providing ... Read more -
Surviving the Chaos of October
Fall in the college counseling profession is like running the proverbial rat race. There simply aren’t enough hours in the day for the amount ... Read more
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Connecticut Moves Closer to Approving Medical Marijuana for EDS
A panel of physicians has voted in favor of adding Ehlers-Danlos syndrome (EDS) to ... -
Let’s Dish About POTS
Many people with Ehlers-Danlos syndrome (EDS) experience a form of dysautonomia called postural orthostatic ... -
Dislocated Joints in EDS
Ehlers-Danlos syndrome (EDS) is a rare disease that affects connective tissue, including the cartilage ... -
I Manage Pain Flares with Physical Activity
I’ve made a lot of progress in learning how to manage Ehlers-Danlos syndrome (EDS), ... -
Genetic Testing is Critical to Accurately Diagnose Vascular EDS, Real-world Study Suggests
Genetic testing is critical to get an accurate diagnosis of vascular Ehlers-Danlos syndrome (vEDS) ... -
Internal Bleeding: What to Watch for When You Have EDS
Ehlers-Danlos syndrome (EDS) is a rare disease that affects connective tissue. Patients with EDS ...
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Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports
News
Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more