Heavy menstrual bleeding affects nearly 9 in 10 women with Ehlers-Danlos syndrome (EDS), with half experiencing severe bleeding, a new study reports. Despite this high burden, many women experience extended delays in EDS diagnosis — often after emergency visits, transfusions, and major surgeries to treat heavy menstrual bleeding.
Discussion
Walking through the door for my first Pilates session in nearly six years, I felt a wave of nerves. The last six months had been a difficult recovery from a severely broken rib and a sprained diaphragm, injuries further complicated by Ehlers-Danlos syndrome (EDS). I was anxious that engaging…
People with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) may experience greater physical and mental health challenges when they also have autism, a survey study in the U.K. suggests. Drawing on responses from more than 1,700 participants, researchers found that autistic participants more often reported pain, sleep…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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