Women at midlife and older age with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD) experience long diagnostic delays, multiple coexisting health conditions, and poor health-related quality of life, according to a U.S. survey. The survey, conducted by Linda K. Anderson, PhD, an adjunct assistant research professor…
Discussion
It’s been almost five months since I fell off my horse, resulting in a broken rib, a sprained diaphragm, and sore core muscles. I started physical therapy (PT) in November, and it has helped a lot. My range of motion has improved, and most of my muscles are far…
Multiple genetic changes across three major biological systems appear to contribute to hypermobile Ehlers-Danlos syndrome (hEDS), according to a new study that used advanced genetic testing and artificial intelligence (AI). As in other types of EDS, researchers found changes in genes involved in the production of collagen, a key…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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