Newly diagnosed? Start your journey here.

Need to know

Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.

Personal experiences

It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.


There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.