Hello world, I’m Lacy Rosenbaum, your hot-off-the-press Ehlers-Danlos News columnist. I’m lucky enough to call a stunning corner of Montana home. It’s the kind of postcard beauty that makes you want to get out and explore — except there are far too many days when my body says no!…
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Women with hypermobile Ehlers–Danlos syndrome may process androgen hormones — steroid hormones such as testosterone and related male sex hormones — differently, which could be linked to some of their symptoms, according to a study. More research is needed to understand why and whether it affects treatment, researchers wrote…
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Note: This column describes the author’s own experiences with pregabalin and nortriptyline. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In the end, it took the way that my daughter and I stood, plus a little bit of luck, for…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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