This week has been incredibly busy for my family and me. It started on Monday with an all-day field trip outdoors in the bitter cold, then cheer practice that evening. Next was coaching cheer at a chilly football game on Tuesday, and a big event on Wednesday that required 10…
Discussion
Difficulties with daily activities, physical activity, and social participation may be important in understanding the extent of disability in people with hypermobile Ehlers-Danlos syndrome (hEDS), a new study suggests. By examining patterns of symptoms, researchers identified three groups with low, moderate, or high levels of disability. Nearly 60% of…
Discussion
“Come on, Mom. It’s time for cheer practice.” It’s nearly dinnertime, and after an already busy day as a mother of four, wife, homemaker, and self-employed woman, I get ready to head out to another cheer practice, where I volunteer as the assistant coach, feeling beyond tired. I signed up…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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