A 23-year-old man in Greece was diagnosed with vascular Ehlers-Danlos syndrome (vEDS) about two years after his symptoms of recurrent bowel ruptures had started, according to a recent case report. While gastrointestinal involvement as the first sign of EDS has been reported, the rarity of the disease and its…
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I feel like my body’s done a flip-flop. Usually my right side causes me the most problems. I have a badly damaged shoulder, hip, finger, hand, and ankle, all on my right side. My left side is normally the “good” one, with only occasional flare-ups. In the…
Zevra Therapeutics is adding Edsivo (celiprolol), an experimental therapy for vascular Ehlers-Danlos syndrome (vEDS), to its clinical pipeline of rare diseases, as part of an agreement in which the company will acquire Acer Therapeutics, The new deal means Zevra will take over the ongoing Phase…
With better control over alpha-gal syndrome triggers, columnist Karen Del Vecchio says she is less fatigued these days.
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