I’m welcoming October this year not from my office chair, but from my husband’s recliner, with supportive pillows tucked behind my back and neck. I’m trying to listen to my Ehlers-Danlos syndrome (EDS)-literate physical therapist and give my body the time and support it needs to heal from my…
Discussion
Breathing problems have a significant effect on daily activities and quality of life for people with hypermobile Ehlers-Danlos syndrome (hEDS) and generalized hypermobility spectrum disorder (G-HSD), a study showed. People with hEDS or G-HSD who had more severe dyspnea (shortness of breath) were more likely to have poorer physical…
Discussion
I don’t have a degree in anatomy, but sometimes I wish I understood the inner workings of the muscles, fascia, joints, and ligaments better. Living with hypermobile Ehlers-Danlos syndrome (hEDS) has forced me to learn far more about my body than I ever expected to, usually the hard way.
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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