Blocking certain steroid hormone signaling helped reduce the risk of life-threatening blood vessel rupture in a mouse model of vascular Ehlers-Danlos syndrome (VEDS), according to a new study. Unexpected tears in the aorta, the largest blood vessel in the body, are a major concern in VEDS. Using a mouse…
Discussion
Sometimes it’s hard to explain what I mean when I say I feel like a twisted pretzel. While my physical therapist (PT) and massage therapist understand, they’re also trained to look for such anomalies. I don’t think it’s something the average person can see, but I definitely feel it when…
Celiprolol may help lower the risk of fatal vascular complications while also providing psychological reassurance for people with vascular Ehlers-Danlos syndrome (vEDS), according to the first study of the treatment conducted outside Europe. In the Japanese study, nearly half of the patients experienced no vascular or nonvascular complications…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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