Sometimes Ehlers-Danlos syndrome (EDS) just doesn’t seem to have a discernible pattern to me. While I’ve been doing much better overall recently, thanks to fascial counterstrain physical therapy (FCS), that doesn’t mean that I don’t have triggers or pain flares. It just means that hopefully they’re less…
Difficulty swallowing, or dysphagia, can be a significant problem in hypermobile Ehlers-Danlos syndrome (hEDS), and may occur alongside gastrointestinal issues that can require supplemental or alternative nutrition or hydration, according to a small U.S. study. Dysphagia appeared to be related to underlying hEDS symptoms and related conditions, including gastrointestinal…
Dismissive attitudes from healthcare providers can lead people with Ehlers-Danlos syndrome (EDS) to doubt their own experiences of chronic pain, a study found. Researchers found that EDS patients facing skepticism from care providers will often end up minimizing their own pain — and as a result, their pain doesn’t…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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