Dismissive attitudes from healthcare providers can lead people with Ehlers-Danlos syndrome (EDS) to doubt their own experiences of chronic pain, a study found. Researchers found that EDS patients facing skepticism from care providers will often end up minimizing their own pain — and as a result, their pain doesn’t…
Discussion
Note: This column describes the author’s experiences with fascial counterstrain therapy (FCS). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. It’s still hard to believe how much I’ve benefited from adding fascial counterstrain therapy (FCS) to my self-care routine.
Discussion
As I sit here for the fourth hour at the infusion center, I feel a wave of gratitude wash over me. I’m thankful to have hydration and other infusion options to help me power through difficult days. It has taken me years to accept that I sometimes need supportive care…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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