People with Ehlers-Danlos syndrome (EDS) are more likely than others to also be diagnosed with a rare and often severe chronic pain condition that usually affects the arms and legs, according to a new U.S. study. In a review of insurance data, researchers in New York found that complex…
Discussion
Nearly half of people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) experience moderate to severe pain at the time of diagnosis, a study in Italy shows. The study identified older age, hypermobile EDS (hEDS), and headaches as factors linked to greater pain severity. “An early pain…
Discussion
Urinary symptoms, chiefly needing to pee more than usual, in people with hypermobile Ehlers-Danlos syndrome (hEDS) may not be caused by bladder problems, but instead by poor coordination of the pelvic floor muscles and the nerves involved in urination, according to a new study. Tests in 27 patients showed…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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