I’ve reached a plateau in my recovery from a badly broken rib and sprained diaphragm that’s been complicated by my Ehlers-Danlos syndrome (EDS), and I’ve been searching for what to do next. Recently, I went in for an evaluation with a physical therapist I’ve known for years, who…
Being lonely is strongly associated with worse mental and physical health in people with hypermobile Ehlers-Danlos syndrome (hEDS), a new study suggests. Support from friends appears to play a meaningful role, while dog companionship may provide emotional benefits for some individuals. “Our findings suggest that loneliness is a potent…
Discussion
A recent social media post from a weather forecaster noted that the temperature, barometric pressure, and humidity would all fluctuate significantly in the coming days, and that the “aches and pains forecast” was high. These wild weather swings can affect people in a variety of ways, aggravating conditions such as…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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