May is EDS Awareness Month, an annual event in which advocates around the world work to increase awareness of Ehlers-Danlos syndrome (EDS) and other hypermobility spectrum disorders, and fundraise on behalf of those living with these genetic conditions. For this year’s awareness month, the Ehlers-Danlos Society — a global…
Discussion
As I drove along the highway, I could feel my muscles getting tighter. Despite my best efforts to avoid setting off a pain flare, I knew I probably wouldn’t be able to stop this one. While I’ve developed a number of strategies over the years to manage my Ehlers-Danlos…
Dentists may help diagnose Ehlers-Danlos syndrome (EDS) by identifying certain oral changes during routine examinations. EDS patients were significantly more likely to have inflamed gums, underdeveloped mouth tissues, jaw joint pain, jaw joint movement and dislocations, and unusual changes in their tooth roots and inner tooth structure, according to…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
Get regular updates to your inbox.
