People with hypermobile Ehlers-Danlos syndrome (hEDS) face a significantly higher risk for a wide range of complex health issues, including heart rate disorders, digestive problems, and postural orthostatic tachycardia syndrome (POTS), according to a new global study. Based on survey data from more than 2,500 patients, the research highlights…
People with Ehlers-Danlos syndrome (EDS) frequently experience self-doubt about their pain and other symptoms, often in the context of skepticism they encounter from clinicians, according to a new U.S. study. The research found that nearly three-quarters of participants questioned the severity — and sometimes even the reality — of…
Discussion
One thing that’s particularly difficult about managing Ehlers-Danlos syndrome (EDS) is that the same activity can affect me differently on different days. I try to keep track of patterns or movements that are likely to cause a pain flare, but unfortunately, it doesn’t always work. Some days, I can…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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