People with hypermobile Ehlers-Danlos syndrome (hEDS) who also have autism commonly experience complicated journeys to diagnosis of both conditions — but once both conditions are accurately diagnosed, patients often report feeling empowered and better able to manage their own care. “Diagnostic journeys were lengthy, gruelling and expensive, particularly for…
Discussion
Summer. A short, but cherished season here in Montana, land of long winters. As soon as the first warm day arrives and the sun shines brightly over our valleys, majestic mountains, and many lakes, I’m eager to get outside and make memories with my family! But I soon remember that…
Discussion
A visit to the dentist can make anyone nervous. That’s certainly true for me, especially for my biannual cleanings. Almost every time I leave the dental hygienist’s chair, I don’t just have clean teeth; I also have a mouthful of painful micro-cuts, excessive bleeding, and an outbreak of awful canker…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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