Note: This column describes the author’s own experiences with pregabalin and nortriptyline. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In the end, it took the way that my daughter and I stood, plus a little bit of luck, for…
Discussion
I tend to get a little nervous before doctors’ appointments, whether they’re in person or virtual. One reason is that I want to make the most of the time I have. I want to be able to talk about my symptoms, discuss any new issues, and ask questions. I also…
Discussion
People with hypermobile Ehlers-Danlos syndrome (hEDS) who also have autism commonly experience complicated journeys to diagnosis of both conditions — but once both conditions are accurately diagnosed, patients often report feeling empowered and better able to manage their own care. “Diagnostic journeys were lengthy, gruelling and expensive, particularly for…
Becoming educated and informed about Ehlers-Danlos syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Ehlers-Danlos syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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