Taking Time to Recharge
Summer and fall have been a nonstop whirlwind. A few weeks after graduation (I work as a college counselor at a private high school), ... Read more
Updates
-
-
Study Finds Shoulder Abnormalities in People with Hypermobile EDS
People with hypermobile Ehlers-Danlos syndrome (hEDS) have larger spaces in the shoulder joint than those without the condition, and this anatomical difference may help ... Read more -
Avoiding Contact Sports/High-impact Activities When You Have EDS
Ehlers-Danlos syndrome (EDS) refers to a group of rare diseases that affect the connective tissues that give structure to the body’s joints, blood vessels, ... Read more -
Will Safety Vest Draw Attention to My EDS?
In the equestrian sport of eventing, we use a lot of gear. One piece of that puzzle is the safety gear we wear, particularly ... Read more -
Nerve Root Blocks May Pose Risk of CSF ‘Leaks’ in EDS Patients, Case Study Warns
A person with Ehlers-Danlos syndrome (EDS), during the course of a routine nerve root block procedure, developed a ‘leak’ of the fluid that normally ... Read more
-
Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in ... -
Individualized Education Plans for Children with EDS
Ehlers-Danlos syndrome (EDS), a group of genetic disorders that affect connective tissue, has symptoms ... -
Penn State Award Targets Doctors of Ehlers-Danlos Patients Without Specialty in This Rare Disease
The Penn State Clinical and Translational Science Institute is funding seven new projects through ... -
Celebrities Share Their EDS Battles and Help to Spread Awareness
Recently, Ehlers-Danlos syndrome (EDS) made news headlines. That doesn’t happen often. Actress Lena Dunham ... -
Acting Up, Ehlers-Danlos Style
A few months ago, our community’s theater company held auditions for two productions. At ... -
Routine Heart Tests Not Needed for Hypermobile EDS Patients Unless Cardiac Problems in Family, Study Suggests
Routine heart tests and echocardiography — a non-invasive test that uses sound waves to create moving ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.
Hypermobile EDS Linked to Severe GI Symptoms, Lower Quality of Life, Study Reports
News
Patients with hypermobile Ehlers-Danlos syndrome (hEDS) have an increased prevalence and severity of gastrointestinal (GI) symptoms, and use more potentially damaging medications than healthy people without the disorder, according to a new study. The data also showed that hEDS ... Read more