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Guest Voice: How I learned I was an EDS zebra, not a unicorn

Lacy J. Rosenbaum is a devoted wife and mother of four, living life to the fullest on her family’s small Montana farm. She enjoys spending time outdoors, caring for her animals, and embracing the joys of motherhood. After years of unexplained, sometimes debilitating symptoms, she was finally diagnosed with…

Bert the pig reminds me to worry not about tomorrow

The past couple weeks have been cold and stressful, so I needed a bit of a pick-me-up. I turned to a television show I hadn’t watched in a while called “The Wizard of Paws,” which follows orthotist Derrick Campana as he makes prosthetic limbs, braces, and carts for animals in…

Learning new ways to manage EDS in cold weather

It’s been really cold here in Virginia recently. I’m a New Englander at heart, so I really don’t mind the cold weather, but down here in the South, life isn’t set up for the kind of temperatures we’ve been having, and definitely not for snow. It’s been a struggle for…

My experience finding EDS support systems

Recently, a reader asked me about Ehlers-Danlos syndrome (EDS) support groups and other organizations, and various ways of handling daily life with EDS. That got me thinking about my own support networks and how they’ve changed over the years. It also made me wonder how others with EDS approach…