Author Archives: Emily Malcolm, PhD

Eye Problems in EDS

Ehlers-Danlos syndrome (EDS) refers to a class of rare genetic disorders that affect the connective tissue. These tissues give structure to the skin and organs, muscles and joints. EDS can potentially affect every system in the body, including the eyes. Eye problems and EDS Kyphoscoliotic EDS…

How EDS Affects the Teeth and Gums

Ehlers-Danlos syndrome (EDS) is a group of rare genetic disorders characterized by weakness in the connective tissue — the tissue that gives structure and strength to muscles, skin, joints, and organs. Each type of EDS has different symptoms that affect patients’ quality of life. One aspect of…

How EDS Affects Mental Health

A combination of symptoms and stress from chronic pain in patients with Ehlers-Danlos syndrome (EDS) can contribute to the risk of mental health problems. EDS refers to a group of disorders that affect the connective tissue, making it weak and easy to damage. Connective tissue gives structure…

Sleep Disorders in Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of disorders that affect the connective tissue that gives structure to joints, tissues, and organs. The disease is characterized by weakness in the connective tissue, though the symptoms and their severity vary between the different types of EDS. It’s common…

Menstruating When You Have EDS

Ehlers-Danlos syndrome (EDS) refers to a group of genetic disorders that affect the connective tissue. The disease is caused by genetic mutations that make the connective tissue weak. This affects different organs and systems in the body. About menstruation Menstruation is the monthly process a woman’s body…

Will I Pass EDS to My Children?

Ehlers-Danlos syndrome (EDS) refers to a group of rare genetic disorders affecting the connective tissue that makes up the skin, joints, and blood vessels, and that gives structure to organs and tissues. Among the many types of EDS, each carries different risks of transmission to the next generation.

Support Networks for EDS

Having a good support network is important for maintaining physical and mental health. Positive support from friends, family, peers, and co-workers can make you more resilient when encountering stress, depression, and anxiety. Although specific studies on support networks in Ehlers-Danlos syndrome (EDS) patient populations have not been…