Author Archives: Emily Malcolm, PhD

Physiotherapy for EDS: What to Expect

Physiotherapy is one of the treatments that may help patients with Ehlers-Danlos syndrome (EDS), a rare genetic disease that affects the connective tissues providing structure to areas of the body that include the joints. Because of the loss of this structure, EDS patients can easily overextend and dislocate…

Dislocated Joints in EDS

Ehlers-Danlos syndrome (EDS) is a rare disease that affects connective tissue,  including the cartilage of the joints. Patients with EDS have fragile skin and tissue, which increases the risk that normal activities may cause a joint to dislocate. What is joint dislocation? Joints are the points at which…

The Importance of Sunscreen for People with EDS

For people with Ehlers-Danlos syndrome (EDS), it’s important to wear sunscreen while outdoors to protect their very fragile skin as overexposure to the sun can cause skin damage. What is Ehlers-Danlos syndrome? Ehlers-Danlos is a rare disease that affects the connective tissue that gives structure to different organs and…

5 Tips for EDS Skin Care

Ehlers-Danlos syndrome (EDS) is a rare condition that affects connective tissue, which is important for maintaining skin elasticity and the shape of organs. Many patients experience hypermobility of joints (where joints extend more than they should, causing damage) and hyper flexibility of the skin (abnormally fragile and stretchy skin).

Tips for Schooling with EDS

For parents of children with a rare disease like Ehlers-Danlos syndrome (EDS), managing the disease and going to school can be challenging. Here are a few tips to help: File a treatment plan with the school A treatment plan contains information about your child’s disease, what the treatments…

5 Tips for EDS Wound Care

Ehlers-Danlos syndrome (EDS) is a rare heritable disease, which affects the connective tissue. Patients generally have soft, velvety skin that is fragile and does not heal quickly. In many types of EDS, scar tissue is slow to form and is easily damaged, with scars to stretch and expand over…