Author Archives: Emily Malcolm, PhD

Traveling Safely When You Have EDS

Ehlers-Danlos syndrome (EDS) is the name given to a group of genetic diseases that affect the connective tissues. Depending on the type of EDS you have, you may have a number of symptoms disrupting your daily life. In some people with this disease, travel can be challenging.

Will EDS Affect my Life Expectancy?

Being diagnosed with a genetic medical condition like Ehlers-Danlos syndrome (EDS) can be difficult and worrying. One of the first questions patients usually ask is what the diagnosis means for their future and how the disease is going to affect their life expectancy. What is life expectancy?…

Warning Signs of Depression in People With EDS

Being diagnosed with a chronic illness, such as Ehlers-Danlos syndrome (EDS), can be stressful and lead to depression in patients and their families. Patients may feel that they’ve lost control of their lives after their diagnosis, which can make them feel anxious. Practicing self-care is important…

Tips to Manage Stress When You Have EDS

Living with a chronic disease like Ehlers-Danlos syndrome (EDS) can be very stressful. Some people may feel like they’ve lost control over their life after getting a diagnosis. Here are some tips to help reduce stress, and improve your mental and physical health. Get enough sleep It’s easy…

EDS and Diet

Eating a “heart-healthy diet” can be important for people with Ehlers-Danlos syndrome (EDS), a rare disease that causes weakness in the connective tissue that gives structure to different organs and tissues in the body. In EDS, patients’ blood vessels may be weaker than normal, meaning that increases…

Playing Musical Instruments When you Have EDS

Ehlers-Danlos syndrome (EDS) is the name given to a group of rare disorders that affect the connective tissue that provides structure to joints, skin, blood vessels, and other organs. People with EDS have fragile skin and loose joints, raising the risk that common activities, like playing musical instruments,…