My right shoulder has been causing me problems for more than 20 years, though I’ve made much progress. The…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
When I woke up on a Saturday morning a few weeks ago, I suspected that I might’ve slept in an…
The rising and falling temperatures we’ve been experiencing lately have been challenging for me. With Ehlers-Danlos syndrome (EDS), I…
I’ve been fighting plantar fasciitis on and off for over a year. While I’ve tried to do some…
I’m a creature of habit. I like my routines, and while I’m perfectly capable of altering them when I need…
When painful Ehlers-Danlos syndrome (EDS) symptoms get me down, I like to imagine that my body’s sore spots have…
For the first time in years, I didn’t go anywhere at all during my two weeks of winter break from…
I’m pretty sure that my extreme stubbornness is one of the ways I persevere in managing my Ehlers-Danlos…
As a teacher, I couldn’t be more ready for winter break. And I’m not alone: Though we still have a…
Over the past few weeks, I’ve been doing some necessary maintenance on the farm where I live: working outside…