I’ve been fighting plantar fasciitis on and off for over a year. While I’ve tried to do some…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I’m a creature of habit. I like my routines, and while I’m perfectly capable of altering them when I need…
When painful Ehlers-Danlos syndrome (EDS) symptoms get me down, I like to imagine that my body’s sore spots have…
For the first time in years, I didn’t go anywhere at all during my two weeks of winter break from…
I’m pretty sure that my extreme stubbornness is one of the ways I persevere in managing my Ehlers-Danlos…
As a teacher, I couldn’t be more ready for winter break. And I’m not alone: Though we still have a…
Over the past few weeks, I’ve been doing some necessary maintenance on the farm where I live: working outside…
Last in a series. Read part one. For a long time, I used to dread going to physical…
First in a series. After I was diagnosed with Ehlers-Danlos syndrome (EDS), one of the many things that…
As someone with significant gastrointestinal problems due to having both Ehlers-Danlos syndrome (EDS) and alpha-gal syndrome, I…