“One day, when you’re my age, you’ll understand pain.” This might be one of the most frustrating and flippant comments…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
In a recent column, I described how my massage therapist and I realized that the cause of my back…
I’ve learned to pay attention so I can tell the symptoms of my Ehlers-Danlos syndrome (EDS) from other…
I’ve been dealing with a lot of muscle pain along the bottom of my ribs for the past couple of…
Every time I think I’ve gotten a handle on the patterns of my Ehlers-Danlos syndrome (EDS), I’m pretty sure…
One thing I know for sure is that I have a much higher pain tolerance than most people. I guess…
The past few weeks have been a whirlwind. A couple of weeks ago, for instance, I went out of town…
I feel like my body’s done a flip-flop. Usually my right side causes me the most problems. I have a…
I’ve said many times that chronic fatigue is one of the toughest parts of living with Ehlers-Danlos syndrome…
“Hey, how did you get that bruise on your face?” I’ve probably gotten that question at least a dozen times…