Recovery is such an up-and-down experience. I want to move forward, make progress, and get on with life, but that’s…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Last week, my discomfort and frustration with my recent rib and diaphragm injury reached a tipping point. More than anything,…
It’s been an interesting couple of weeks as I recover from broken ribs and an injured diaphragm. I’m trying to…
Physical compensation can be such an odd duck to tackle. Right now, I’m struggling not only with broken ribs…
I stood there staring at a container on the top shelf of my kitchen cabinet, debating if I should reach…
Sometimes life teaches us lessons we don’t want to learn. This has been the case for me recently as I…
Did you know you can sprain your diaphragm? I certainly didn’t. Although it’s rare, you can injure it like any…
As I leaned over to wash my hands in the restroom, I heard an audible pop. Half a second later,…
Ever since I was diagnosed with Ehlers-Danlos syndrome (EDS) at age 22, I’ve been told that horseback riding is…
I wrote a column a few months ago about gaining a ganglion cyst on my right pointer finger when I…